Hemophilia Patient Organization Self-Assessment — Russian
A self-assessment is a useful exercise for organizations to take a closer look at what they do and how they do it. The process can help identify strengths and weaknesses and guide strategic planning. In 2011, the WFH developed this self-assessment specifically for its national member organizations (NMOs). It features a scoring system to evaluate […]
Quality Data Collection — Russian
Quality data are extremely useful in advocating for better care for people with bleeding disorders. This Fact Sheet introduces the rationale for data collection, the criteria for quality data, the keys for successful quality data collection, and examples of how quality data collection can provide the foundation of effective advocacy.
Guidelines for the Management of Hemophilia — Russian
The 3rd edition has also been translated into the following languages, with permission from the WFH, by NMOs/Other Organizations: Georgian, Portuguese, Ukrainian The 2nd edition has also been translated into the following languages, with permission from the WFH, by NMOs: Azerbaijani, Polish, Traditional Chinese This third edition, fully reviewed by global experts, contains clinical practice recommendations […]
Carriers and Women with Hemophilia — Russian
This edition is also available in: Japanese This edition of this resource has also been translated into the following languages, with permission from the WFH, by NMOs: Setswana, Traditional Chinese Many carriers of hemophilia also experience symptoms of the disorder. Some women live with their symptoms for years without being diagnosed or even suspecting they have […]
What are Inherited Platelet Function Disorders? — Russian
This patient handbook contains basic information about the inheritance, diagnosis, symptoms and management of inherited platelet function disorders.
Structure and Functions of Comprehensive Hemophilia Treatment Centres — Russian
Also Available In: Japanese Access to a comprehensive hemophilia treatment centre (HTC) is a critical component of care. This fact sheet outlines how HTCs are set up and the ways in which they improve the overall health and well-being of patients with bleeding disorders.
Diagnosis of Hemophilia and Other Bleeding Disorders: A Laboratory Manual — Russian
The 3rd edition is available in: English, Spanish Written and reviewed by the world’s leading experts in coagulation testing, this is the definitive, how-to guide for the accurate diagnosis of hemophilia and other bleeding disorders.
What are Rare Clotting Factor Deficiencies? — Russian
Also Available In: Japanese This resource has also been translated into the following languages, with permission from the WFH, by NMOs: Traditional Chinese This patient handbook contains basic information about the inheritance, diagnosis, symptoms and management of rare coagulation factor deficiencies.
Patient Outreach Guide for Hemophilia and Other Bleeding Disorders — Russian
This guide helps national hemophilia organizations plan and carry out an outreach campaign to identify people with hemophilia or other bleeding disorders who have not been diagnosed or are underserved by healthcare services.
Advantages of a National Tender System for Clotting Factor Concentrates — Russian
Also Available In: Japanese A national tender system is a cost-effective system for the purchase of products or services, such as clotting factor concentrates, that facilitates the prediction of demand and use of factor products and can lead to a higher standard of care.
What is von Willebrand Disease? — Russian
This edition is also available in: Japanese This edition of this resource has also been translated into the following languages, with permission from the WFH, by NMOs: Farsi, Polish, Bengali, Setswana This patient handbook contains basic information about the inheritance, diagnosis, symptoms and management of von Willebrand disease.
Hemophilia in Pictures Educator’s Guide — Russian
Also Available In: Japanese A companion to Hemophilia in Pictures, this Educator’s guide provides more detailed information for advanced learning. Also includes tips for effective patient education, key talking points, and review quizzes.