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Procurement models | Global Policy and Access Summit 2021 — Russian

In this session from the Global Policy and Access Summit, Mukesh Garodia, Brian O’Mahony, Yuri Zhulyov, Margarita Elizabeth Garcia Gonzalez and Brian Fitzgerald give an overview of various procurement models for hemophilia and other inherited bleeding disorders therapeutic products, present key principles in setting up an efficient national procurement mechanism and highlight the importance of […]

International Women’s Day webinar | March 8 2022 — Russian

Listen to this 90-minute webinar presented on March 8, 2022, to learn about women and girls with bleeding disorders. The webinar is a joint collaboration between the WFH Women and Girls with Bleeding Disorders (WGBD) committee and the WFH von Willebrand Disease (VWD) and Rare Bleeding Disorders (RBD) committee. Speakers will include Dawn Rotellini (U.S.A), […]

Advocating for Better Care for People with VWD | September 1 2021 — Russian

Listen to this 90-minute webinar presented on September 1, 2021 to learn about advocating for better care using the ASH ISTH NHF WFH 2021 Guidelines on the Diagnosis and Management of von Willebrand Disease (VWD). The session was moderated by Magdy El Ekiaby, MD (WFH VWD & RBD Committee). Susie Couper (Member of the WFH […]

Practical Education on Bleeding Disorders: Knowledge for All | WFH webinar series | December 16 2021 – Russian

Listen to this 2-hour webinar presented on December 16, 2021, to learn about global topics related to bleeding disorders, with a focus on comorbidities associated with hemophilia. Glenn Pierce (WFH Vice President, Medical), Lochana Nanayakkara (WFH Dental Committee chair), Bruce Luxon (Chair, Department of Medicine), Cedric Hermans (WFH Medical Board Member), Nathalie Roussel (Associate professor) […]

Module 5 – Adherence | Workshop for Psychosocial Professionals — Russian

This module was presented by Susan Cutter at the Virtual Workshop for Psychosocial Professionals in Europe on June 23, 2021. To view other modules from this series, please click here. This WFH module was originally presented in English. The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment […]

Что такое профилактическое лечение?

The previous edition of this resource has also been translated into the following languages, with permission from the WFH, by NMOs: Farsi, Setswana This patient handbook contains basic information about prophylaxis, the regular infusion of clotting factor concentrates in order to prevent bleeding. Prophylaxis is the goal of treatment for people with severe hemophilia, allowing […]

Communicating impact: tips on effective reporting | October 29 2021 — Russian

Listen to this 90-minute webinar presented on October 29, 2021 on Communicating impact: tips on effective reporting. This webinar offers participants recommendations and tips for communicating the impact and achievements of their projects in a meaningful way, as well as producing effective programmatic reports, financial tracking and budgeting. Using the framework of the Development Grant […]