Procurement models | Global Policy and Access Summit 2021 — Russian
In this session from the Global Policy and Access Summit, Mukesh Garodia, Brian O’Mahony, Yuri Zhulyov, Margarita Elizabeth Garcia Gonzalez and Brian Fitzgerald give an overview of various procurement models for hemophilia and other inherited bleeding disorders therapeutic products, present key principles in setting up an efficient national procurement mechanism and highlight the importance of […]
Что такое ингибиторы?
Also Available In: Japanese This patient handbook contains basic information about inhibitors, the most serious complication of hemophilia.
International Women’s Day webinar | March 8 2022 — Russian
Listen to this 90-minute webinar presented on March 8, 2022, to learn about women and girls with bleeding disorders. The webinar is a joint collaboration between the WFH Women and Girls with Bleeding Disorders (WGBD) committee and the WFH von Willebrand Disease (VWD) and Rare Bleeding Disorders (RBD) committee. Speakers will include Dawn Rotellini (U.S.A), […]
Proceedings of the WFH’s Eleventh Global Forum on Research and Treatment Products for Bleeding Disorders — Russian
A summary of discussions held at the Eleventh WFH Global Forum on Research and Treatment Products for Bleeding Disorders which brings together patient groups, healthcare providers, researchers, regulators, industry representatives, and not-for-profit fractionators.
Advocating for Better Care for People with VWD | September 1 2021 — Russian
Listen to this 90-minute webinar presented on September 1, 2021 to learn about advocating for better care using the ASH ISTH NHF WFH 2021 Guidelines on the Diagnosis and Management of von Willebrand Disease (VWD). The session was moderated by Magdy El Ekiaby, MD (WFH VWD & RBD Committee). Susie Couper (Member of the WFH […]
Practical Education on Bleeding Disorders: Knowledge for All | WFH webinar series | December 16 2021 – Russian
Listen to this 2-hour webinar presented on December 16, 2021, to learn about global topics related to bleeding disorders, with a focus on comorbidities associated with hemophilia. Glenn Pierce (WFH Vice President, Medical), Lochana Nanayakkara (WFH Dental Committee chair), Bruce Luxon (Chair, Department of Medicine), Cedric Hermans (WFH Medical Board Member), Nathalie Roussel (Associate professor) […]
Module 10 — Coping with complications of joint disease | Workshop for Psychosocial Professionals — Russian
This module was presented by Mohsena Olath-Carramtally at the Virtual Workshop for Psychosocial Professionals in Europe on June 23, 2021. To view other modules from this series, please click here. This WFH module was originally presented in English. The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment […]
Module 5 – Adherence | Workshop for Psychosocial Professionals — Russian
This module was presented by Susan Cutter at the Virtual Workshop for Psychosocial Professionals in Europe on June 23, 2021. To view other modules from this series, please click here. This WFH module was originally presented in English. The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment […]
Module 4 — Assessing and enhancing coping strategies: fostering resilience | Workshop for Psychosocial Professionals — Russian
This module was presented by Patricia Cabré at the Virtual Workshop for Psychosocial Professionals in Europe on June 23, 2021. To view other modules from this series, please click here. This WFH workshop was originally presented in English. The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment […]
Что такое профилактическое лечение?
The previous edition of this resource has also been translated into the following languages, with permission from the WFH, by NMOs: Farsi, Setswana This patient handbook contains basic information about prophylaxis, the regular infusion of clotting factor concentrates in order to prevent bleeding. Prophylaxis is the goal of treatment for people with severe hemophilia, allowing […]
Strengthening comprehensive care: using data to inform clinical practice | November 11 2021 — Russian
Listen to this 90-minute webinar, Strengthening comprehensive care: using data to inform clinical practice, presented on November 11, 2021. This is the last webinar in the PACT Comprehensive Care Series, designed to support healthcare providers in setting up and strengthening comprehensive care in their centres. Speakers included Dr. Catherine Lambert (Hematologist at the Division of […]
Communicating impact: tips on effective reporting | October 29 2021 — Russian
Listen to this 90-minute webinar presented on October 29, 2021 on Communicating impact: tips on effective reporting. This webinar offers participants recommendations and tips for communicating the impact and achievements of their projects in a meaningful way, as well as producing effective programmatic reports, financial tracking and budgeting. Using the framework of the Development Grant […]