Substitution therapy | Virtual Summit 2020
Despite significant paradigm shifts in the medical management of hemophilia A with inhibitors and the expanding use of novel non-factor therapies, FVIII-based immune tolerance induction (ITI) is still the only effective means to inhibitor eradication. With the recently introduced Atlanta protocol, emicizumab prophylaxis is given in combination with 50-100 IU/kg FVIII three times a week. […]
Physical activity for joint health and wellness | Virtual Summit 2020
In this session from the WFH 2020 Virtual Summit, Paul McLaughlin, Adolfo Llinas, Pamela Narayan & Chavez Edgecombe discuss how exercising joints and muscles can reduce spontaneous bleeding in the long term. This session will aim to demonstrate easy and practical methods in musculoskeletal care from orthopedist, physiotherapist and patient perspectives, including bone health without […]
Opening plenary | Virtual Summit 2020
This session from the WFH 2020 Virtual Summit is the official opening of the WFH Virtual Summit: Connecting the Global Bleeding Disorders Community. The WFH President, Mr. Alain Weill, will present welcoming remarks, along with the WFH VP (Medical), Dr. Glenn Pierce, and the WFH’s CEO, Mr. Alain Baumann, launching the first and exciting new […]
Nurses: Unmet areas of evidence-based nursing in bleeding disorders care | Virtual Summit 2020
As the role of hemophilia nurses continues to expand globally, they are practicing at ever-more advanced levels, delivering entirely nurse-led care. This session from the WFH 2020 Virtual Summit with Kate Khair, Chris Guelcher, Debra Pollard, Kelly Tickle & Mahmoud Abu Riash, will cover best evidence-based practices and will also look at how the role […]
Nurses: Emerging hemophilia nursing skills | Virtual Summit 2020
This session from the WFH 2020 Virtual Summit, with Kate Khair, Amber Federizo, Michelle Witkop, Regina Butler & Cathy Harrison, will cover best evidence-based practices and will also look at how the role of nurses in delivering care will change dramatically over the coming years. The WFH does not engage in the practice of medicine […]
Psychosocial: Training and career guidance for youth with bleeding disorders | Virtual Summit 2020
In this session from the WFH 2020 Virtual Summit, Susan Cutter, Claude Bartholomew, Annie Bole, Tony Roberts & Santosh Manivannan will explore the ways in which social workers can assist youth with bleeding disorders explore careers and develop skills that will prepare them for employment. The presentation will also address the economic disparity in countries […]
Musculoskeletal: Synovitis & synovectomy | Virtual Summit 2020
This session from the WFH 2020 Virtual Summit with Sébastien Lobet, Eline van Bergen, Sylvia Thomas & Mauricio Silva will address the current understanding of synovitis and its treatment options, with specific emphasis on chemical and radioactive synovectomy, surgical options, rehabilitation, and non-surgical management. The WFH does not engage in the practice of medicine and […]
Multidisciplinary plenary: Quality of life | Virtual Summit 2020
This plenary from the WFH 2020 Virtual Summit seeks to explore and explain the role of pain. Deon York, Lorimer Moseley and Dr. Bajan Singh will explore the new understanding of pain, and how that understanding can change one’s perspectives of dealing with pain, as well as an overview of what sleep is, how it […]
Advocating for Better Care for People with VWD | September 1 2021
Listen to this 90-minute webinar presented on September 1, 2021 to learn about advocating for better care using the ASH ISTH NHF WFH 2021 Guidelines on the Diagnosis and Management of von Willebrand Disease (VWD). The session was moderated by Magdy El Ekiaby, MD (WFH VWD & RBD Committee). Susie Couper (Member of the WFH […]
Practical Education on Bleeding Disorders: Knowledge for All | WFH webinar series | December 16 2021
Listen to this 2-hour webinar presented on December 16, 2021, to learn about global topics related to bleeding disorders, with a focus on comorbidities associated with hemophilia. Glenn Pierce (WFH Vice President, Medical), Lochana Nanayakkara (WFH Dental Committee chair), Bruce Luxon (Chair, Department of Medicine), Cedric Hermans (WFH Medical Board Member), Nathalie Roussel (Associate professor) […]
Genetic Counseling and Psychosocial Support for Carriers | Workshop for Psychosocial Professionals
This module was presented by Silvina Graña at the Virtual Workshop for Psychosocial Professionals in Central and South America on April 9, 2021. To view other modules from this series, please click here. This WFH workshop was originally presented in Spanish. The WFH does not engage in the practice of medicine and under no circumstances […]
Psychosocial Resource Hub
The WFH Virtual Workshops for Psychosocial Professionals series was developed in collaboration with the WFH Psychosocial Committee. The series targets professionals who work with people with bleeding disorders and aims to provide useful and practical tools for their work. The topics covered in this educational series are based on the modules of the WFH Standardized […]