Patient Focus – ASH ISTH NHF WFH Guidelines on the Diagnosis and Management of VWD
Listen to this patient-focused 60-minute webinar, presented on June 16, 2020 at the World Federation of Hemophilia (WFH) Virtual Summit, to get a preview of two of the recommendations resulting from the ASH ISTH NHF ISTH WFH 2021 VWD Guidelines. Learn why international clinical guidelines are particularly important to this community, how they were developed, […]
International VWD guidelines and how to use them
Listen to this 75-minute webinar, presented on November 20, 2020 at the World Federation of Hemophilia (WFH) Global Summit on Women & Girls with Inherited Bleeding Disorders, to learn more about how the ASH ISTH NHF ISTH WFH 2021 VWD Guidelines can be used for advocacy in ensuring adequate treatment and care for persons living […]
What is von Willebrand Disease – Bengali
The 2023 edition is available in: English, Spanish, French This edition is also available in: Arabic, Russian, Simplified Chinese, Japanese This edition of the resource has also been translated into the following language, with permission from the WFH, by NMOs: Polish, Farsi, Setswana This patient handbook contains basic information about the inheritance, diagnosis, symptoms and […]
Molecular Diagnosis of von Willebrand Disease
The accurate diagnosis of von Willebrand disease (VWD) is crucial to its management. This resource describes the techniques used to determine the genetic nature, or genotype, of a suspected case of VWD. The companion monograph, TOH 55 Diagnosis of von Willebrand Disease: Phenotypic Characterization, provides a detailed review of the laboratory tests that can be […]
Management of Women with VWD
In the Sunday afternoon joint Laboratory Sciences and VWD Professional Development Workshop, Andra H. James explains the unique issues in the management of women with von Willebrand Disease (VWD). This talk was part of the joint Laboratory Sciences and VWD Professional Development Workshop. See below for the other talks in this workshop:
Desmopressin (DDAVP)
This resource has also been translated into the following languages, with permission from the WFH, by NMOs: Polish Desmopressin (DDAVP) may be the treatment of choice for patients with mild or moderate hemophilia A and type 1 von Willebrand disease (VWD). This Fact Sheet presents essential information about this synthetic medicine which costs much less than […]
The Basic Science, Diagnosis, and Clinical Management of von Willebrand Disease
Offers a detailed review of the basic science, clinical features, and classification of the various forms of von Willebrand Disease, as well as its diagnosis and management.