Advocacy During Covid-19: Having our Voices Heard
This 90-minute webinar on advocacy for National Member Organizations (NMOs) took place on October 27th, 2020. Dr. Alexsandro dos Santos Machado (Brazil), Dr. Munira Borhany (Pakistan) and James Kago (Kenya) discussed the advocacy challenges and activities of their NMOs during the COVID-19 pandemic. WFH Board Member Dawn Rotellini (USA) moderated the session and provided different advocacy […]
Long-Term Planning for Leadership Change
Today’s leaders are extremely motivated and united in their commitment to improving hemophilia treatment and care. But what will happen when these leaders retire? This monograph was written to help hemophilia organizations prepare for the future.
The WFH Haemophilia Centre Twinning programme: ten years of growth, 1993-2003
By linking emerging and established treatment centres, the World Federation of Hemophilia’s Twinning Program has improved treatment and care for people with bleeding disorders around the world.
Improving Care Beyond our Borders: A Twinning Guide for Hemophilia Treatment Centres
The Hemophilia Treatment Centre (HTC) Twinning program pairs emerging HTCs with established ones to help increase the levels of diagnosis and medical attention for people with hemophilia.
Reaching Beyond Our Borders: A Twinning Guide for Hemophilia Organizations
The Hemophilia Organization Twinning program links emerging and established hemophilia patient groups to share knowledge in areas such as patient education, outreach, fundraising, and all other aspects of operating a successful hemophilia patient society.