Patient Focus – ASH ISTH NHF WFH Guidelines on the Diagnosis and Management of VWD

Listen to this patient-focused 60-minute webinar, presented on June 16, 2020 at the World Federation of Hemophilia (WFH) Virtual Summit, to get a preview of two of the recommendations resulting from the ASH ISTH NHF ISTH WFH 2021 VWD Guidelines. Learn why international clinical guidelines are particularly important to this community, how they were developed, […]

International VWD guidelines and how to use them

Listen to this 75-minute webinar, presented on November 20, 2020 at the World Federation of Hemophilia (WFH) Global Summit on Women & Girls with Inherited Bleeding Disorders, to learn more about how the ASH ISTH NHF ISTH WFH 2021 VWD Guidelines can be used for advocacy in ensuring adequate treatment and care for persons living […]

Planning and Initiating Projects: A Guide for Emergent NMOs

Volunteer team members, and their beneficiaries, often have differing opinions on what projects should be of highest priority for an organization. It is essential to reach agreement on your priorities in a relatively quick and efficient manner and to coordinate the team’s energies, in order to be the most effective. This guide provides strategies for […]

Hemophilia Patient Organization Self-Assessment

A self-assessment is a useful exercise for organizations to take a closer look at what they do and how they do it. The process can help identify strengths and weaknesses and guide strategic planning. In 2011, the WFH developed this self-assessment specifically for its national member organizations (NMOs). It features a scoring system to evaluate […]