This guide helps national hemophilia organizations plan and carry out an outreach campaign to identify people with hemophilia or other bleeding disorders who have not been diagnosed or are underserved by healthcare services.
A hemophilia organization can advocate for change with doctors, hospitals, health authorities, government officials, or politicians. This publication outlines the various steps in putting together an integrated lobbying strategy.
Raising funds requires careful research and detailed planning, as well as creativity and good business practices. This publication is intended to help volunteers and staff of hemophilia societies support their work through fundraising.