PACT Advocacy Academy: Towards better access to care and treatment globally | Global Policy and Access Summit 2021 – Arabic
In this session from the Global Policy and Access Summit, Donna Coffin, Salome Mekhuzla, Carlos Safadi Marquez, John Gershman and Mathieu Jackson present an overview of the WFH’s Path to Access to Care and Treatment (PACT) Program and launch the new PACT Advocacy Academy – an 8-month training course for NMO leaders and advocates developed […]
Models of care delivery today and in the post-pandemic world | Global Policy and Access Summit 2021 – Arabic
In this session from the Global Policy and Access Summit, Dan Hart, Margareth Ozelo, Hatoon Mohammed and Daniel Anibal Garcia discuss how the pandemic has brought many challenges to the existing models of organization and delivery of care. This session highlights the opportunities that also arise in the post-pandemic era. Presenters will share different case […]
Effective strategies to improve access to treatment and care | Global Policy and Access Summit 2021 – Arabic
In this session from the Global Policy and Access Summit, Dawn Rotellini, Bradley Rayner, Declan Noone and Durhane Wong-Rieger, will address the importance of data analysis to inform policy decisions, building alliances with patient groups and other effective strategies to improve access to treatment and care for people with bleeding disorders. Emphasis will be made […]
Economics of care and access to therapies | Global Policy and Access Summit 2021 – Arabic
In this session from the Global Policy and Access Summit, Dawn Rotellini, Mark Skinner, Jamie O’Hara and David Page will present an overview of the current state of access to therapies for people with bleeding disorders. Speakers will also highlight the importance of patient-relevant data on treatment choices and health policy decision-making. Session will include […]
Current landscape of access to treatment & care globally | Global Policy and Access Summit 2021 – Arabic
How is the pandemic impacting global healthcare systems around the world? What will the “new normal” be? In this opening session from the Global Policy and Access Summit, Cesar Garrido (WFH President) and Glenn Pierce, MD (WFH VP Medical) will address the effects of the pandemic on WFH’s vision of Treatment for All, as well […]
Collaborating to increase access: Perspectives from different stakeholders | Global Policy and Access Summit 2021 – Arabic
In this session from the Global Policy and Access Summit, Glenn Pierce, MD (WFH VP Medical), will moderate a panel discussion with Megan Adediran, Emna Gouider & Latifa Belakhel, bringing together perspectives from a patient organization leader, a healthcare provider and a national government representative. This discussion will highlight potential areas of collaboration between stakeholders […]
Recommendations and key take aways | Global Policy and Access Summit 2021
In this final session from the Global Policy and Access Summit, Salome Mekhuzla, David Page, Mukesh Garodia and Antonio Gomez Cavallini discuss how the global bleeding disorders community is sustaining and advancing care today and in the post-pandemic world. They will also cover the strategies that have proven successful, and what contributions various stakeholders bring […]
Procurement models | Global Policy and Access Summit 2021 – Arabic
In this session from the Global Policy and Access Summit, Mukesh Garodia, Brian O’Mahony, Yuri Zhulyov, Margarita Elizabeth Garcia Gonzalez and Brian Fitzgerald give an overview of various procurement models for hemophilia and other inherited bleeding disorders therapeutic products, present key principles in setting up an efficient national procurement mechanism and highlight the importance of […]
Medical Plenary: Gene Therapy | Virtual Summit 2020 – Arabic
In this session from the WFH 2020 Virtual Summit, Steve Pipe and Luigi Naldini explore the promise of gene therapy and the broad-based multi-stakeholder preparation that is needed to deliver on this achievement. Steve Pipe explores that, although we currently stand on the threshold of this achievement, delivering on this promise will require broad-based multi-stakeholder […]
WFH Guidelines for the Management of Hemophilia | Virtual Summit 2020 – Arabic
In this session from the WFH 2020 Virtual Summit, Glenn Pierce, Alok Srivastava, Steven Pipe, Manuel Carcao, Margaret Ragni and Johnny Mahlangu present and discuss updates to the WFH Guidelines for the Management of Hemophilia. Discussion topics include hemostatic agents, prophylaxis, inhibitors, and treatment of specific hemorrhages. Click on the icon below to access more […]
Redefining prophylaxis in the modern era | Virtual Summit 2020 – Arabic
The currently evolving novel therapies for the management of hemophilia has ushered in a new era characterized by improved prophylaxis targets and outcomes. In this session from the WFH 2020 Virtual Summit, Johnny Mahlangu, Victor Blanchette, Robert Klamroth and Emna Gouider redefine prophylaxis in the modern era by revisiting its definition, presenting data to support […]