Саммит по вопросам глобальной политики и доступа 2023
Презентации и дискуссии третьего Саммита WFH по вопросам глобальной политики и доступа (GPAS) посвящены вопросам расширения доступа к диагностике, лечению и уходу для больных с геморрагическими заболеваниями. В них участвуют докладчики из местных и международных партнерских организаций, представители национальных правительств, специалисты в области здравоохранения, лидеры национальных организаций-членов WFH и защитники интересов больных с нарушениями свертываемости […]
Саммит по вопросам глобальной политики и доступа 2022
Презентации и дискуссии второго Саммита WFH по вопросам глобальной политики и доступа (GPAS) будут посвящены вопросам улучшения ухода и доступа к лечению. В них примут участие докладчики и участники из местных и международных партнерских организаций, представители национальных правительств, специалисты в области здравоохранения, лидеры национальных организаций-членов WFH и защитники интересов больных с нарушениями свертываемости крови. Всемирная […]
PACT Advocacy Academy: Towards better access to care and treatment globally | Global Policy and Access Summit 2021 — Russian
In this session from the Global Policy and Access Summit, Donna Coffin, Salome Mekhuzla, Carlos Safadi Marquez, John Gershman and Mathieu Jackson present an overview of the WFH’s Path to Access to Care and Treatment (PACT) Program and launch the new PACT Advocacy Academy – an 8-month training course for NMO leaders and advocates developed […]
Models of care delivery today and in the post-pandemic world | Global Policy and Access Summit 2021 — Russian
In this session from the Global Policy and Access Summit, Dan Hart, Margareth Ozelo, Hatoon Mohammed and Daniel Anibal Garcia discuss how the pandemic has brought many challenges to the existing models of organization and delivery of care. This session highlights the opportunities that also arise in the post-pandemic era. Presenters will share different case […]
Effective strategies to improve access to treatment and care | Global Policy and Access Summit 2021 — Russian
In this session from the Global Policy and Access Summit, Dawn Rotellini, Bradley Rayner, Declan Noone and Durhane Wong-Rieger, will address the importance of data analysis to inform policy decisions, building alliances with patient groups and other effective strategies to improve access to treatment and care for people with bleeding disorders. Emphasis will be made […]
Economics of care and access to therapies | Global Policy and Access Summit 2021 — Russian
In this session from the Global Policy and Access Summit, Dawn Rotellini, Mark Skinner, Jamie O’Hara and David Page will present an overview of the current state of access to therapies for people with bleeding disorders. Speakers will also highlight the importance of patient-relevant data on treatment choices and health policy decision-making. Session will include […]
Current landscape of access to treatment & care globally | Global Policy and Access Summit 2021 – Russian
How is the pandemic impacting global healthcare systems around the world? What will the “new normal” be? In this opening session from the Global Policy and Access Summit, Cesar Garrido (WFH President) and Glenn Pierce, MD (WFH VP Medical) will address the effects of the pandemic on WFH’s vision of Treatment for All, as well […]
Collaborating to increase access: Perspectives from different stakeholders | Global Policy and Access Summit 2021 – Russian
In this session from the Global Policy and Access Summit, Glenn Pierce, MD (WFH VP Medical), will moderate a panel discussion with Megan Adediran, Emna Gouider & Latifa Belakhel, bringing together perspectives from a patient organization leader, a healthcare provider and a national government representative. This discussion will highlight potential areas of collaboration between stakeholders […]
Planning and Initiating Projects: A Guide for Emergent NMOs — Russian
Volunteer team members, and their beneficiaries, often have differing opinions on what projects should be of highest priority for an organization. It is essential to reach agreement on your priorities in a relatively quick and efficient manner and to coordinate the team’s energies, in order to be the most effective. This guide provides strategies for […]
Patient Outreach Guide for Hemophilia and Other Bleeding Disorders — Russian
This guide helps national hemophilia organizations plan and carry out an outreach campaign to identify people with hemophilia or other bleeding disorders who have not been diagnosed or are underserved by healthcare services.
Benefits of a National Patient Registry — Russian
Also Available In: Japanese Patient registries are crucial for monitoring trends in health, allocating resources, organizing and tracking distribution of treatment products, and improving the purchasing process on a national scale.
Guide to Developing a National Patient Registry — Russian
Having a national patient registry means being able to answer fundamental questions about the hemophilia population within a given country. This step-by-step guide outlines the basic principles of data collection, maintenance, and analysis and compares different types of registries.