Volunteer team members, and their beneficiaries, often have differing opinions on what projects should be of highest priority for an organization. It is essential to reach agreement on your priorities in a relatively quick and efficient manner and to coordinate the team’s energies, in order to be the most effective. This guide provides strategies for […]
This guide helps national hemophilia organizations plan and carry out an outreach campaign to identify people with hemophilia or other bleeding disorders who have not been diagnosed or are underserved by healthcare services.
Also Available In: Japanese Patient registries are crucial for monitoring trends in health, allocating resources, organizing and tracking distribution of treatment products, and improving the purchasing process on a national scale.
Having a national patient registry means being able to answer fundamental questions about the hemophilia population within a given country. This step-by-step guide outlines the basic principles of data collection, maintenance, and analysis and compares different types of registries.