Key Concepts and Principles of Care for Bleeding Disorders | July 28, 2021 — Russian
Listen to this back-to-basics 90-minute webinar, presented on July 28, 2021, which offers members of NMOs the opportunity to get a refresher on the key concepts and principles of care for inherited bleeding disorders. The webinar program also covers foundational knowledge on topics relevant for NMO members and advocates. This webinar was chaired by Carlos […]
Practical Education on Bleeding Disorders: Knowledge for All | WFH webinar series | April 22 2021 — Russian
Listen to this 2-hour webinar presented on April 22, 2021 to learn about global topics related to bleeding disorders. The session was moderated by Glenn Pierce (WFH Vice President, Medical) and Marlène Beijlevelt (WFH Nurses Committee chair). Cedric Hermans (WFH Medical board member), Gianluigi Pasta (WFH MSK Committee chair), Sukesh Nair (Professor of laboratory haematology), […]
Structure and Functions of Comprehensive Hemophilia Treatment Centres — Russian
Also Available In: Japanese Access to a comprehensive hemophilia treatment centre (HTC) is a critical component of care. This fact sheet outlines how HTCs are set up and the ways in which they improve the overall health and well-being of patients with bleeding disorders.
Benefits of a National Patient Registry — Russian
Also Available In: Japanese Patient registries are crucial for monitoring trends in health, allocating resources, organizing and tracking distribution of treatment products, and improving the purchasing process on a national scale.
Economic Benefits of Comprehensive Hemophilia Care — Russian
Also Available In: Japanese Patients receiving comprehensive hemophilia care have a lower mortality rate and a lower hospitalization rate for bleeding complications than those treated outside a hemophilia treatment centre
Musculoskeletal Complications of Hemophilia: The Joint — Russian
Also Available In: English, Spanish, Arabic This is not an official WFH translation. This resource has been translated with permission by a WFH National Member Organization (NMO), and is shared here with their kind permission. Translating organizations are encouraged to have translations reviewed by local experts, the WFH is not responsible for the translation or […]