Recommendations and key take aways | Global Policy and Access Summit 2021 — Russian
In this final session from the Global Policy and Access Summit, Salome Mekhuzla, David Page, Mukesh Garodia and Antonio Gomez Cavallini discuss how the global bleeding disorders community is sustaining and advancing care today and in the post-pandemic world. They will also cover the strategies that have proven successful, and what contributions various stakeholders bring […]
Procurement models | Global Policy and Access Summit 2021 — Russian
In this session from the Global Policy and Access Summit, Mukesh Garodia, Brian O’Mahony, Yuri Zhulyov, Margarita Elizabeth Garcia Gonzalez and Brian Fitzgerald give an overview of various procurement models for hemophilia and other inherited bleeding disorders therapeutic products, present key principles in setting up an efficient national procurement mechanism and highlight the importance of […]
International Women’s Day webinar | March 8 2022 — Russian
Listen to this 90-minute webinar presented on March 8, 2022, to learn about women and girls with bleeding disorders. The webinar is a joint collaboration between the WFH Women and Girls with Bleeding Disorders (WGBD) committee and the WFH von Willebrand Disease (VWD) and Rare Bleeding Disorders (RBD) committee. Speakers will include Dawn Rotellini (U.S.A), […]
Advocating for Better Care for People with VWD | September 1 2021 — Russian
Listen to this 90-minute webinar presented on September 1, 2021 to learn about advocating for better care using the ASH ISTH NHF WFH 2021 Guidelines on the Diagnosis and Management of von Willebrand Disease (VWD). The session was moderated by Magdy El Ekiaby, MD (WFH VWD & RBD Committee). Susie Couper (Member of the WFH […]
Practical Education on Bleeding Disorders: Knowledge for All | WFH webinar series | December 16 2021 – Russian
Listen to this 2-hour webinar presented on December 16, 2021, to learn about global topics related to bleeding disorders, with a focus on comorbidities associated with hemophilia. Glenn Pierce (WFH Vice President, Medical), Lochana Nanayakkara (WFH Dental Committee chair), Bruce Luxon (Chair, Department of Medicine), Cedric Hermans (WFH Medical Board Member), Nathalie Roussel (Associate professor) […]
Module 10 — Coping with complications of joint disease | Workshop for Psychosocial Professionals — Russian
This module was presented by Mohsena Olath-Carramtally at the Virtual Workshop for Psychosocial Professionals in Europe on June 23, 2021. To view other modules from this series, please click here. This WFH module was originally presented in English. The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment […]
Module 4 — Assessing and enhancing coping strategies: fostering resilience | Workshop for Psychosocial Professionals — Russian
This module was presented by Patricia Cabré at the Virtual Workshop for Psychosocial Professionals in Europe on June 23, 2021. To view other modules from this series, please click here. This WFH workshop was originally presented in English. The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment […]
Module 5 – Adherence | Workshop for Psychosocial Professionals — Russian
This module was presented by Susan Cutter at the Virtual Workshop for Psychosocial Professionals in Europe on June 23, 2021. To view other modules from this series, please click here. This WFH module was originally presented in English. The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment […]
Strengthening comprehensive care: using data to inform clinical practice | November 11 2021 — Russian
Listen to this 90-minute webinar, Strengthening comprehensive care: using data to inform clinical practice, presented on November 11, 2021. This is the last webinar in the PACT Comprehensive Care Series, designed to support healthcare providers in setting up and strengthening comprehensive care in their centres. Speakers included Dr. Catherine Lambert (Hematologist at the Division of […]
Communicating impact: tips on effective reporting | October 29 2021 — Russian
Listen to this 90-minute webinar presented on October 29, 2021 on Communicating impact: tips on effective reporting. This webinar offers participants recommendations and tips for communicating the impact and achievements of their projects in a meaningful way, as well as producing effective programmatic reports, financial tracking and budgeting. Using the framework of the Development Grant […]
Practical Education on Bleeding Disorders: Knowledge for All | WFH webinar series | October 12 2021 — Russian
Listen to this 2-hour webinar presented on October 12, 2021 to learn about global topics related to bleeding disorders, with a focus on comorbidities associated with hemophilia. The session was moderated by Glenn Pierce (WFH Vice President, Medical). Gianluigi Pasta (WFH MSK Committee chair), Paul McLaughlin (Specialist Physiotherapist), Adolfo Llinas (Medical director), Robert Klamroth (Department […]
Delivering comprehensive care: practical considerations | October 21 2021 — Russian
Listen to this 90-minute webinar, Delivering comprehensive care: practical considerations, presented on October 21, 2021. This is the second of three webinars in the PACT Comprehensive Care Series, designed to support healthcare providers in setting up and strengthening comprehensive care in their centres. The session was moderated by Dr. Miguel Escobar (WFH Board of Directors). […]