Setting up comprehensive care: key principles, services, and roles | September 29, 2021 — Russian
Listen to this 90-minute webinar, Setting up comprehensive care: key principles, services, and roles, presented on September 29, 2021, the first of 3 webinars in the PACT Comprehensive Care Series, designed to support healthcare providers in setting up and strengthening comprehensive care in their centres. The session was moderated by Dr. Alok Srivastava (Professor in […]
Glenn Pierce and Steve Pipe discuss the latest updates on Gene Therapy for hemophilia | July 2021 — Russian
This video was originally presented in English. The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or consultation on a specific medical problem, the WFH recommends that you contact your physician or local treatment centre. Before administering any products, the WFH urges […]
Key Concepts and Principles of Care for Bleeding Disorders | July 28, 2021 — Russian
Listen to this back-to-basics 90-minute webinar, presented on July 28, 2021, which offers members of NMOs the opportunity to get a refresher on the key concepts and principles of care for inherited bleeding disorders. The webinar program also covers foundational knowledge on topics relevant for NMO members and advocates. This webinar was chaired by Carlos […]
Practical Education on Bleeding Disorders: Knowledge for All | WFH webinar series | July 27 2021 — Russian
Listen to this 2-hour webinar presented on July 27, 2021 to learn about global topics related to bleeding disorders. The session was moderated by Glenn Pierce (WFH Vice President, Medical) and Cedric Hermans (WFH Medical board member). Steven Pipe (Professor of Pediatrics and Pathology), Heiner Wedemeyer (Professor), Nathan Connell (Assistant Professor of Medicine), Dawn Rotellini […]
COVID-19 Vaccines and People with Bleeding Disorders: Safety and Accessibility — Russian
Listen to this 90-minute webinar presented on June 2, 2021 to learn about the latest WFH updates on COVID-19 vaccination for people with bleeding disorders. The webinar provided an opportunity for attendees to learn about the authorization and safety of COVID-19 vaccines, with a focus on the regulators’ perspectives from the EU and the U.S.A., […]
Improving Care for People with VWD | May 18 2021 — Russian
Listen to this 90-minute webinar presented on May 18, 2021 to learn about the recently published ASH ISTH NHF WFH 2021 Guidelines on the Diagnosis and Management of von Willebrand Disease (VWD). The session was moderated by Nathan Connell (Assistant Professor of Medicine, Harvard Medical School). Michelle Lavin (WFH VWD & RBD Committee Chair), Baiba […]
COVID-19 Treatment and Vaccination for PWBDs — Russian
Listen to this 90-minute webinar presented on March 12, 2021 to learn about the latest WFH guidance regarding COVID-19 treatment and vaccination for People with Bleeding Disorders (PWBDs). The objective of this webinar was to address questions related to COVID-19 in PWBD. It provided an opportunity for attendees to follow the latest WFH recommendations for […]
Practical Education on Bleeding Disorders: Knowledge for All | WFH webinar series | April 22 2021 — Russian
Listen to this 2-hour webinar presented on April 22, 2021 to learn about global topics related to bleeding disorders. The session was moderated by Glenn Pierce (WFH Vice President, Medical) and Marlène Beijlevelt (WFH Nurses Committee chair). Cedric Hermans (WFH Medical board member), Gianluigi Pasta (WFH MSK Committee chair), Sukesh Nair (Professor of laboratory haematology), […]
Medical Plenary: Gene Therapy | Virtual Summit 2020 — Russian
In this session from the WFH 2020 Virtual Summit, Steve Pipe and Luigi Naldini explore the promise of gene therapy and the broad-based multi-stakeholder preparation that is needed to deliver on this achievement. Steve Pipe explores that, although we currently stand on the threshold of this achievement, delivering on this promise will require broad-based multi-stakeholder […]
WFH Guidelines for the Management of Hemophilia | Virtual Summit 2020 — Russian
In this session from the WFH 2020 Virtual Summit, Glenn Pierce, Alok Srivastava, Steven Pipe, Manuel Carcao, Margaret Ragni and Johnny Mahlangu present and discuss updates to the WFH Guidelines for the Management of Hemophilia. Discussion topics include hemostatic agents, prophylaxis, inhibitors, and treatment of specific hemorrhages. Click on the icon below to access more […]
Women and girls with hemophilia | Virtual Summit 2020 — Russian
In this session from the WFH 2020 Virtual Summit, Roseline d’Oiron, Sarah O’Brien and Andra James discuss issues on women and girls with hemophilia (WGWH), including female carriers with low levels of FVIII or FIX and/or bleeding experiences. The key points that will be covered are the importance of early diagnosis during childhood of affected […]
Redefining prophylaxis in the modern era | Virtual Summit 2020 – Russian
The currently evolving novel therapies for the management of hemophilia has ushered in a new era characterized by improved prophylaxis targets and outcomes. In this session from the WFH 2020 Virtual Summit, Johnny Mahlangu, Victor Blanchette, Robert Klamroth and Emna Gouider redefine prophylaxis in the modern era by revisiting its definition, presenting data to support […]