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Year: 2005

Language: English

This resource is also available in: Arabic French Russian Spanish Simplified Chinese

Author(s): Bruce Evatt

Format: Document

Guide to Developing a National Patient Registry

ADDITIONAL INFORMATION

Having a national patient registry means being able to answer fundamental questions about the hemophilia population within a given country. This step-by-step guide outlines the basic principles of data collection, maintenance, and analysis and compares different types of registries.

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