{"id":416,"date":"2017-10-24T08:50:41","date_gmt":"2017-10-24T12:50:41","guid":{"rendered":"https:\/\/elearning.wfh.org\/resource\/pedhal-ou-version-pediatrique-de-la-liste-dactivites-chez-les-hemophiles\/"},"modified":"2022-09-21T15:07:27","modified_gmt":"2022-09-21T19:07:27","slug":"pedhal-ou-version-pediatrique-de-la-liste-dactivites-chez-les-hemophiles","status":"publish","type":"resource","link":"https:\/\/elearning.wfh.org\/fr\/resource\/pedhal-ou-version-pediatrique-de-la-liste-dactivites-chez-les-hemophiles\/","title":{"rendered":"PedHAL ou version p\u00e9diatrique de la liste d\u2019activit\u00e9s chez les h\u00e9mophiles"},"content":{"rendered":"<h3>Paediatric Haemophilia Activities List (PedHAL) v0.11<\/h3>\n<p class=\"\"><strong>Authors\/developers<\/strong><br class=\"\">Groen W, Van der Net J, Helders P, Fischer K.<\/p>\n<p class=\"\"><a href=\"https:\/\/elearning.wfh.org\/resource\/pediatric-haemophilia-activities-list-pedhal-children-and-teenager-version\/\" target=\"_blank\" rel=\"noopener\">Questionnaire \u2013 children\u2019s version 0.11<\/a><br class=\"\"><a href=\"https:\/\/elearning.wfh.org\/resource\/pediatric-haemophilia-activities-list-pedhal-child-and-parent-version\/\" target=\"_blank\" rel=\"noopener\">Questionnaire \u2013 parents\u2019 version 0.11<\/a><\/p>\n<h6><em>N.B. These scores are posted with the permission of the developers.<\/em><\/h6>\n<h6><em>More recent versions of these scores have been developed. The scores provided here (v0.11) are the versions for which the below evaluation was carried out.<\/em><\/h6>\n\t\t<div data-elementor-type=\"section\" data-elementor-id=\"7800\" class=\"elementor elementor-7800\" data-elementor-post-type=\"elementor_library\">\n\t\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-239963c8 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"239963c8\" data-element_type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-no\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-139e5b25\" data-id=\"139e5b25\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-7b820044 elementor-widget elementor-widget-spacer\" data-id=\"7b820044\" data-element_type=\"widget\" data-widget_type=\"spacer.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<div class=\"elementor-spacer\">\n\t\t\t<div class=\"elementor-spacer-inner\"><\/div>\n\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-16b4380f elementor-widget elementor-widget-html\" data-id=\"16b4380f\" data-element_type=\"widget\" data-widget_type=\"html.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<style>\r\n\r\n\/* Style the tab *\/\r\n.popTab {\r\n  float: left;\r\n  border: 1px solid #ccc;\r\n  background-color: #f1f1f1;\r\n  width: 35%;\r\n  height: 500px;\r\n}\r\n\r\n\/* Style the buttons inside the tab *\/\r\n.popTab button {\r\n  display: block;\r\n  background-color: inherit;\r\n  color: black;\r\n  padding: 15px 10px;\r\n  width: 100%;\r\n  border: none;\r\n  border-radius: 0;\r\n  outline: none;\r\n  text-align: left;\r\n  cursor: pointer;\r\n  transition: 0.3s;\r\n  font-size: 1.3em;\r\n}\r\n\r\n\/* Change background color of buttons on hover *\/\r\n.popTab button:hover {\r\n  background-color: #ddd;\r\n}\r\n\r\n\/* Create an active\/current tablink class *\/\r\n.popTab button.active {\r\n  background-color: #ccc;\r\n  border: none!important;\r\n}\r\n\r\n\/* Style the tab content *\/\r\n.popContent {\r\n  float: left;\r\n  padding: 0px 1em;\r\n  border: 1px solid #ccc;\r\n  width: 65%;\r\n  border-left: none;\r\n  height: 500px;\r\n  overflow-y:auto;\r\n}\r\n\r\n.popContent table tr {\r\n    \/*pointer-events: none;*\/\r\n\r\n}\r\n\r\n.popContent table td {\r\n    border-top: none;\r\n    border-left: none;\r\n    border-right: none;\r\n    border-bottom: 1px solid #eee;\r\n    background-color: white!important;\r\n    padding-left: 0;\r\n}\r\n\r\n<\/style>\r\n\r\n\r\n<div class=\"popTab\">\r\n   <button class=\"popLinks active\" onclick=\"openTab(event, 'description')\">Description<\/button>    \r\n   <button class=\"popLinks\" onclick=\"openTab(event, 'utility')\">Utility<\/button>\r\n   <button class=\"popLinks\" onclick=\"openTab(event, 'administration')\">Administration<\/button>\r\n   <button class=\"popLinks\" onclick=\"openTab(event, 'psychometrics')\">Psychometrics<\/button>\r\n   <button class=\"popLinks\" onclick=\"openTab(event, 'references')\">References<\/button>\r\n \r\n  \r\n<\/div>\r\n\r\n<div id=\"description\" class=\"popContent\">\r\n  <h3>Description<\/h3>\r\n  <p>The PedHAL should be selected to measure the impact of hemophilia on self-perceived functional abilities in children.<\/p>\r\n\r\n  <p>The current version (0.11) consists of 53 items in seven domains:<\/p>\r\n\r\n <ol style=\"margin-bottom:1em\">\r\n \t<li>Sitting\/kneeling\/standing (10 items)<\/li>\r\n \t<li>Functions of the legs (11 items)<\/li>\r\n \t<li>Functions of the arms (6 items)<\/li>\r\n \t<li>Use of transportation (3 items)<\/li>\r\n \t<li>Self care (9 items)<\/li>\r\n \t<li>Household tasks (3 items)<\/li>\r\n \t<li>Leisure activities and sports (11 items)<\/li>\r\n\r\n<\/ol>\r\n\r\n<p>A parent\/proxy (age 4-8) and child version (8-18) was constructed with some minor linguistic differences (see questionnaires, above).<\/p>\r\n\r\n\r\n\r\n  <p><strong>Contact person:<\/strong><br>\r\nKathelijn Fischer, at the secretariat of the Van Creveldkliniek, University Medical Centre Utrecht:\r\n<a href=\"mailto:vck-secretariaat@umcutrecht.nl\">vck-secretariaat@umcutrecht.nl<\/a>\r\n<\/p>\r\n\r\n<p class=\"\"><strong>Date of this review: <\/strong>February 21, 2011<\/p>\r\n\r\n<\/div>\r\n\r\n\r\n<div id=\"utility\" class=\"popContent\" style=\"display:none\">\r\n  <h3>Utility<\/h3>\r\n  \r\n  <p><strong>Overall utility:<\/strong><br>\r\n   To be determined with further study.<\/p>\r\n\r\n  <p><strong>Limitations:<\/strong><br>\r\n   The pedHAL 0.11 is primarily an outcome instrument under study. Psychometric properties have not yet been fully evaluated in the full spectrum of levels of disability.<\/p>\r\n  \r\n<\/div>\r\n\r\n\r\n<div id=\"administration\" class=\"popContent\" style=\"display:none\">\r\n  <h3>Administration<\/h3>        \r\n  <ol style=\"margin-bottom:1em\">\r\n  \t<li><strong>Time to complete:<\/strong> 10-20 minutes for both the child and parent versions.<\/li>\r\n \t<li><strong>Equipment\/space required:<\/strong> None. Only the questionnaire and are pen are needed.<\/li>\r\n \t<li><strong>Training required:<\/strong> None. The instructions provided are self-explanatory.<\/li>\r\n \t<li><strong>Cost:<\/strong> None<\/li>\r\n \t<li><strong>Scoring\/scaling\/interpretation of results:<\/strong> Normalized scoring per domain and sum score, analogous to that of the <a href=\"https:\/\/elearning.wfh.org\/resource\/haemophilia-activities-list-hal\/\" target=\"_blank\" rel=\"noopener\">Haemophilia Activities List (HAL)<\/a>. A detailed scoring system will become available in the pedHAL version 1.0.<\/li>\r\n  <\/ol>\r\n\r\n<\/div>\t\r\n\r\n<div id=\"psychometrics\" class=\"popContent\" style=\"display:none\">\r\n  <h3>Psychometrics<\/h3>        \r\n  \r\n  <p><strong>Psychometric properties:<\/strong><\/p>\r\n  \r\n  <ol style=\"margin-bottom:1em\">\r\n  <li>Construct validity (preliminary data of pilot test):\r\n     <ul>\r\n       <li>Convergent validity: Most subscales showed moderate associations with joint examination (r=0.42\u20130.63) and moderate to good associations with the physical function subscale of the Child Health Questionnaire (CHQ-50)\u00a0(r=0.48\u20130.78).<\/li>\r\n       <li>Divergent\/discriminant validity: Preliminary analysis shows the pedHAL does measure functional abilities. No significant associations were found between the pedHAL and the subscales mental health and behaviour, except for the subscales leisure and sport and mental health (r=0.47).<\/li>\r\n    <\/ul>\r\n   <\/li>\r\n   <li>Criterion validity has not been assessed.There is no gold standard to compare to the pedHAL.<\/li>\r\n   <li>Reliability (preliminary data of pilot test):\r\n     <ul>\r\n       <li>Reproducibility, as assessed by a Wilcoxon signed rank order test, showed no differences on the level of subscales and sum score of the PedHAL on test and retest for both parent and child forms.<\/li>\r\n       <li>The limits of agreement (LOA) were low on most subscales for the parent (LOA 0.2\u00b10.9) and child (LOA 0.2\u00b10.9) forms.<\/li>\r\n       <li>The implication for the current user is that the pedHAL should be interpreted very cautiously until further psychometric information becomes available.<\/li>\r\n     <\/ul>\r\n   <\/li>\r\n   <li>Responsiveness\/sensitivity has not been evaluated. The pedHAL should be interpreted very cautiously until further psychometric information becomes available.<\/li>\r\n\r\n  <\/ol>\r\n  \r\n  <p><strong>Languages studied:<\/strong><\/p>\r\n  <p>The pedHAL has been developed in Dutch. Canadian English, Canadian French, and Romanian are currently being studied. Cross-cultural validity of the pedHAL has yet to be established. Until then, results should be interpreted with care.<\/p>\r\n\r\n  <p><strong>Groups tested with this measure:<\/strong><\/p>\r\n  <p>32 Dutch boys with severe and mild hemophilia A or B, between 4-18 yrs of age. Severe patients were on prophylactic treatment and mild patients were treated on-demand.<\/p>\r\n\r\n  <p><a href=\"\/resource\/glossary-of-psychometric-properties\/\" target=\"_blank\" rel=\"noopener\"><button>Glossary of Psychometric Properties<\/button><\/a><\/p>\r\n\r\n<\/div>\r\n\r\n\r\n<div id=\"references\" class=\"popContent\" style=\"display:none\">\r\n  <h3>References<\/h3>        \r\n  <ol>\r\n    \t<li>Groen WG, van der Net J, Helders PJ, Fischer K. Development and preliminary testing of a Paediatric Version of the Haemophilia Activities List (pedhal). <em>Haemophilia<\/em> 2010 Mar; 16(2):281-9.<\/li>\r\n  <\/ol>\r\n\r\n<\/div>\r\n\r\n\r\n\r\n\r\n<script>\r\nfunction openTab(evt, country) {\r\n  var i, popContent, popLinks;\r\n  popContent = document.getElementsByClassName(\"popContent\");\r\n  for (i = 0; i < popContent.length; i++) {\r\n    popContent[i].style.display = \"none\";\r\n  }\r\n  popLinks = document.getElementsByClassName(\"popLinks\");\r\n  for (i = 0; i < popLinks.length; i++) {\r\n    popLinks[i].className = popLinks[i].className.replace(\" active\", \"\");\r\n  }\r\n  document.getElementById(country).style.display = \"block\";\r\n  evt.currentTarget.className += \" active\";\r\n}\r\n<\/script>\r\n   \t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-57df8b06 elementor-widget elementor-widget-spacer\" data-id=\"57df8b06\" data-element_type=\"widget\" data-widget_type=\"spacer.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<div class=\"elementor-spacer\">\n\t\t\t<div class=\"elementor-spacer-inner\"><\/div>\n\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t\n","protected":false},"featured_media":23231,"template":"","format":[],"old-keyword":[],"topic":[3994],"serie":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v23.4 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>PedHAL ou version p\u00e9diatrique de la liste d\u2019activit\u00e9s chez les h\u00e9mophiles - eLearning Platform<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/elearning.wfh.org\/fr\/resource\/pedhal-ou-version-pediatrique-de-la-liste-dactivites-chez-les-hemophiles\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"PedHAL ou version p\u00e9diatrique de la liste d\u2019activit\u00e9s chez les h\u00e9mophiles - eLearning Platform\" \/>\n<meta property=\"og:description\" content=\"Paediatric Haemophilia Activities List (PedHAL) v0.11 Authors\/developersGroen W, Van der Net J, Helders P, Fischer K. Questionnaire \u2013 children\u2019s version 0.11Questionnaire \u2013 parents\u2019 version 0.11 N.B. These scores are posted with the permission of the developers. More recent versions of these scores have been developed. The scores provided here (v0.11) are the versions for which [&hellip;]\" \/>\n<meta property=\"og:url\" content=\"https:\/\/elearning.wfh.org\/fr\/resource\/pedhal-ou-version-pediatrique-de-la-liste-dactivites-chez-les-hemophiles\/\" \/>\n<meta property=\"og:site_name\" content=\"eLearning Platform\" \/>\n<meta property=\"article:modified_time\" content=\"2022-09-21T19:07:27+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/elearning.wfh.org\/wp-content\/uploads\/2022\/09\/PedHAL_FR.png\" \/>\n\t<meta property=\"og:image:width\" content=\"1280\" \/>\n\t<meta property=\"og:image:height\" content=\"720\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/png\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Dur\u00e9e de lecture estim\u00e9e\" \/>\n\t<meta name=\"twitter:data1\" content=\"1 minute\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"WebPage\",\"@id\":\"https:\/\/elearning.wfh.org\/fr\/resource\/pedhal-ou-version-pediatrique-de-la-liste-dactivites-chez-les-hemophiles\/\",\"url\":\"https:\/\/elearning.wfh.org\/fr\/resource\/pedhal-ou-version-pediatrique-de-la-liste-dactivites-chez-les-hemophiles\/\",\"name\":\"PedHAL ou version p\u00e9diatrique de la liste d\u2019activit\u00e9s chez les h\u00e9mophiles - 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Questionnaire \u2013 children\u2019s version 0.11Questionnaire \u2013 parents\u2019 version 0.11 N.B. These scores are posted with the permission of the developers. More recent versions of these scores have been developed. 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