{"id":28638,"date":"2024-02-08T15:08:34","date_gmt":"2024-02-08T19:08:34","guid":{"rendered":"https:\/\/elearning.wfh.org\/resource\/outil-de-prise-de-decision-partagee-de-la-fmh-pour-la-prise-en-charge-de-lhemophilie\/"},"modified":"2025-05-06T14:45:38","modified_gmt":"2025-05-06T18:45:38","slug":"outil-de-prise-de-decision-partagee-de-la-fmh-pour-la-prise-en-charge-de-lhemophilie","status":"publish","type":"resource","link":"https:\/\/elearning.wfh.org\/fr\/resource\/outil-de-prise-de-decision-partagee-de-la-fmh-pour-la-prise-en-charge-de-lhemophilie\/","title":{"rendered":"Outil de prise de d\u00e9cision partag\u00e9e de la FMH pour la prise en charge de l\u2019h\u00e9mophilie"},"content":{"rendered":"<p class=\"clamp_p\">L\u2019outil de prise de d\u00e9cision partag\u00e9e de la FMH est un syst\u00e8me interactif d\u2019aide \u00e0 la d\u00e9cision con\u00e7u pour faciliter les discussions sur les options th\u00e9rapeutiques entre les personnes atteintes d\u2019h\u00e9mophilie A ou B et\/ou les aidants et leur \u00e9quipe soignante, afin d\u2019aboutir \u00e0 une prise de d\u00e9cision \u00e9clair\u00e9e.<\/p>\n<p class=\"clamp_p\">L\u2019outil de prise de d\u00e9cision partag\u00e9e de la FMH fournit un cadre pour guider les personnes atteintes d\u2019h\u00e9mophilie dans le processus de r\u00e9flexion relatif aux objectifs et aux pr\u00e9f\u00e9rences en mati\u00e8re de traitement, fournit un \u00e9clairage \u00e9quilibr\u00e9 et fond\u00e9 sur des \u00e9l\u00e9ments probants concernant les r\u00e9sultats attendus par cat\u00e9gorie de traitement, et aide les personnes atteintes d\u2019h\u00e9mophilie \u00e0 naviguer dans un paysage th\u00e9rapeutique complexe.<\/p>\n<p class=\"clamp_p\">L\u2019outil sera mis \u00e0 jour deux fois par ann\u00e9e lorsque de nouvelles donn\u00e9es seront disponibles.<\/p>\n<h3 style=\"margin-top: 1.5em; margin-bottom: 1em; font-family: 'Avenir Black', sans-serif; background: linear-gradient(to right, #ed174c, #1f3f78); -webkit-text-fill-color: transparent; -webkit-background-clip: text; text-wrap: balance;\">Ressources suppl\u00e9mentaires<\/h3>\n<p style=\"font-size: 1.2em; color: #1f3f78; text-transform: uppercase; font-weight: bold;\">VID\u00c9OS<\/p>\n<div style=\"margin: 1em 0 2em 0; height: auto; display: grid; grid-gap: 1.5rem; grid-template-columns: repeat(auto-fit, minmax(250px, 1fr));\">\n<div style=\"display: flex; flex-direction: column; justify-content: space-between; border: 1px solid #ccc;\">\n<div style=\"border-bottom: 1px solid #ccc;\"><a href=\"https:\/\/elearning.wfh.org\/fr\/resource\/therapie-genique-pour-lhemophilie\/\"><img src=\"https:\/\/elearning.wfh.org\/wp-content\/uploads\/2024\/02\/sdm-gene-video-FR.png\" \/><\/a><\/div>\n<div>\n<p style=\"padding: 1em 1em 0 1em;\"><a href=\"https:\/\/elearning.wfh.org\/fr\/resource\/therapie-genique-pour-lhemophilie\/\">Th\u00e9rapie g\u00e9nique pour l\u2019h\u00e9mophilie<\/a><\/p>\n<\/div>\n<div>\n<p style=\"font-size: 1rem; padding: .6em .5em .6em 1em; margin: 0; color: #1f3f78; background: #f2f4f5; font-weight: bold;\"><i class=\"fa fa-play-circle-o\"><\/i>\u00a0 VID\u00c9OS<\/p>\n<\/div>\n<\/div>\n<div style=\"display: flex; flex-direction: column; justify-content: space-between; border: 1px solid #ccc;\">\n<div style=\"border-bottom: 1px solid #ccc;\"><a href=\"https:\/\/elearning.wfh.org\/fr\/resource\/traitements-par-anticorps-bispecifique\/\"><img src=\"https:\/\/elearning.wfh.org\/wp-content\/uploads\/2024\/02\/sdm-bispecific-video-FR.png\" \/><\/a><\/div>\n<div>\n<p style=\"padding: 1em 1em 0 1em;\"><a href=\"https:\/\/elearning.wfh.org\/fr\/resource\/traitements-par-anticorps-bispecifique\/\">Traitements par anticorps bisp\u00e9cifiques<\/a><\/p>\n<\/div>\n<div>\n<p style=\"font-size: 1rem; padding: .6em .5em .6em 1em; margin: 0; color: #1f3f78; background: #f2f4f5; font-weight: bold;\"><i class=\"fa fa-play-circle-o\"><\/i>\u00a0 VID\u00c9OS<\/p>\n<\/div>\n<\/div>\n<div style=\"display: flex; flex-direction: column; justify-content: space-between; border: 1px solid #ccc;\">\n<div style=\"border-bottom: 1px solid #ccc;\"><a href=\"https:\/\/elearning.wfh.org\/fr\/resource\/traitements-par-reequilibrage-de-lhemostase\/\"><img src=\"https:\/\/elearning.wfh.org\/wp-content\/uploads\/2024\/02\/sdm-hemostatic-video-FR.png\" \/><\/a><\/div>\n<div>\n<p style=\"padding: 1em 1em 0 1em;\"><a href=\"https:\/\/elearning.wfh.org\/fr\/resource\/traitements-par-reequilibrage-de-lhemostase\/\">Traitements par r\u00e9\u00e9quilibrage de l\u2019h\u00e9mostase<\/a><\/p>\n<\/div>\n<div>\n<p style=\"font-size: 1rem; padding: .6em .5em .6em 1em; margin: 0; color: #1f3f78; background: #f2f4f5; font-weight: bold;\"><i class=\"fa fa-play-circle-o\"><\/i>\u00a0 VID\u00c9OS<\/p>\n<\/div>\n<\/div>\n<div style=\"display: flex; flex-direction: column; justify-content: space-between; border: 1px solid #ccc;\">\n<div style=\"border-bottom: 1px solid #ccc;\"><a href=\"https:\/\/elearning.wfh.org\/fr\/resource\/traitements-substitutifs-a-demi-vie-prolongee\/\"><img src=\"https:\/\/elearning.wfh.org\/wp-content\/uploads\/2024\/02\/sdm-ehl-video-FR.png\" \/><\/a><\/div>\n<div>\n<p style=\"padding: 1em 1em 0 1em;\"><a href=\"https:\/\/elearning.wfh.org\/fr\/resource\/traitements-substitutifs-a-demi-vie-prolongee\/\">Traitements substitutifs \u00e0 demi-vie prolong\u00e9e<\/a><\/p>\n<\/div>\n<div>\n<p style=\"font-size: 1rem; padding: .6em .5em .6em 1em; margin: 0; color: #1f3f78; background: #f2f4f5; font-weight: bold;\"><i class=\"fa fa-play-circle-o\"><\/i>\u00a0 VID\u00c9OS<\/p>\n<\/div>\n<\/div>\n<div style=\"display: flex; flex-direction: column; justify-content: space-between; border: 1px solid #ccc;\">\n<div style=\"border-bottom: 1px solid #ccc;\"><a href=\"https:\/\/elearning.wfh.org\/fr\/resource\/traitements-substitutifs-a-demi-vie-standard\/\"><img src=\"https:\/\/elearning.wfh.org\/wp-content\/uploads\/2024\/02\/sdm-shl-video-FR.png\" \/><\/a><\/div>\n<div>\n<p style=\"padding: 1em 1em 0 1em;\"><a href=\"https:\/\/elearning.wfh.org\/fr\/resource\/traitements-substitutifs-a-demi-vie-standard\/\">Traitements substitutifs \u00e0 demi-vie standard<\/a><\/p>\n<\/div>\n<div>\n<p style=\"font-size: 1rem; padding: .6em .5em .6em 1em; margin: 0; color: #1f3f78; background: #f2f4f5; font-weight: bold;\"><i class=\"fa fa-play-circle-o\"><\/i>\u00a0 VID\u00c9OS<\/p>\n<\/div>\n<\/div>\n<\/div>\n<hr style=\"border-top: 1px solid #dfdfdf; margin: 1.5em 0!important;\" \/>\n<p style=\"font-size: 1.2em; color: #1f3f78; text-transform: uppercase; font-weight: bold;\">FICHES D&rsquo;INFORMATIONS<\/p>\n<div style=\"margin: 1em 0 2em 0; height: auto; display: grid; grid-gap: 1.5rem; grid-template-columns: repeat(auto-fit, minmax(250px, 1fr));\">\n<div style=\"width: fit-content; display: flex; flex-direction: column; justify-content: space-between; border: 1px solid #ccc;\">\n<div style=\"border-bottom: 1px solid #ccc;\"><a href=\"https:\/\/elearning.wfh.org\/fr\/resource\/fiche-dinformation-sur-la-therapie-genique-pour-lhemophilie-a\/\"><img src=\"https:\/\/elearning.wfh.org\/wp-content\/uploads\/2024\/02\/2387-img.png\" \/><\/a><\/div>\n<div>\n<p style=\"padding: 1em 1em 0 1em;\"><a href=\"https:\/\/elearning.wfh.org\/fr\/resource\/fiche-dinformation-sur-la-therapie-genique-pour-lhemophilie-a\/\">Fiche d\u2019information sur la th\u00e9rapie g\u00e9nique pour l\u2019h\u00e9mophilie A<\/a><\/p>\n<\/div>\n<div>\n<p style=\"font-size: 1rem; white-space: nowrap; padding: .6em 1em .6em 1em; margin: 0; color: #1f3f78; background: #f2f4f5; font-weight: bold;\"><i class=\"far fa-file-pdf\"><\/i>\u00a0 DOCUMENTS ET PDF<\/p>\n<\/div>\n<\/div>\n<div style=\"width: fit-content; display: flex; flex-direction: column; justify-content: space-between; border: 1px solid #ccc;\">\n<div style=\"border-bottom: 1px solid #ccc;\"><a href=\"https:\/\/elearning.wfh.org\/fr\/resource\/fiche-dinformation-sur-la-therapie-genique-pour-lhemophilie-b\/\"><img src=\"https:\/\/elearning.wfh.org\/wp-content\/uploads\/2024\/02\/2389-img.png\" \/><\/a><\/div>\n<div>\n<p style=\"padding: 1em 1em 0 1em;\"><a href=\"https:\/\/elearning.wfh.org\/fr\/resource\/fiche-dinformation-sur-la-therapie-genique-pour-lhemophilie-b\/\">Fiche d\u2019information sur la th\u00e9rapie g\u00e9nique pour l\u2019h\u00e9mophilie B<\/a><\/p>\n<\/div>\n<div>\n<p style=\"font-size: 1rem; white-space: nowrap; padding: .6em 1em .6em 1em; margin: 0; color: #1f3f78; background: #f2f4f5; font-weight: bold;\"><i class=\"far fa-file-pdf\"><\/i>\u00a0\u00a0DOCUMENTS ET PDF<\/p>\n<\/div>\n<\/div>\n<div style=\"width: fit-content; display: flex; flex-direction: column; justify-content: space-between; border: 1px solid #ccc;\">\n<div style=\"border-bottom: 1px solid #ccc;\"><a href=\"https:\/\/elearning.wfh.org\/fr\/resource\/fiche-dinformation-sur-les-traitements-par-anticorps-bispecifique\/\"><img src=\"https:\/\/elearning.wfh.org\/wp-content\/uploads\/2024\/02\/2383-img.png\" \/><\/a><\/div>\n<div>\n<p style=\"padding: 1em 1em 0 1em;\"><a href=\"https:\/\/elearning.wfh.org\/fr\/resource\/fiche-dinformation-sur-les-traitements-par-anticorps-bispecifique\/\">Fiche d\u2019information sur les traitements par anticorps bispecifique<\/a><\/p>\n<\/div>\n<div>\n<p style=\"font-size: 1rem; white-space: nowrap; padding: .6em 1em .6em 1em; margin: 0; color: #1f3f78; background: #f2f4f5; font-weight: bold;\"><i class=\"far fa-file-pdf\"><\/i>\u00a0\u00a0DOCUMENTS ET PDF<\/p>\n<\/div>\n<\/div>\n<div style=\"width: fit-content; display: flex; flex-direction: column; justify-content: space-between; border: 1px solid #ccc;\">\n<div style=\"border-bottom: 1px solid #ccc;\"><a href=\"https:\/\/elearning.wfh.org\/fr\/resource\/fiche-dinformation-sur-les-traitements-par-reequilibrage-de-lhemostase\/\"><img src=\"https:\/\/elearning.wfh.org\/wp-content\/uploads\/2024\/02\/2385-img.png\" \/><\/a><\/div>\n<div>\n<p style=\"padding: 1em 1em 0 1em;\"><a href=\"https:\/\/elearning.wfh.org\/fr\/resource\/fiche-dinformation-sur-les-traitements-par-reequilibrage-de-lhemostase\/\">Fiche d\u2019information sur les traitements par r\u00e9\u00e9quilibrage de l\u2019h\u00e9mostase<\/a><\/p>\n<\/div>\n<div>\n<p style=\"font-size: 1rem; white-space: nowrap; padding: .6em 1em .6em 1em; margin: 0; color: #1f3f78; background: #f2f4f5; font-weight: bold;\"><i class=\"far fa-file-pdf\"><\/i>\u00a0\u00a0DOCUMENTS ET PDF<\/p>\n<\/div>\n<\/div>\n<div style=\"width: fit-content; display: flex; flex-direction: column; justify-content: space-between; border: 1px solid #ccc;\">\n<div style=\"border-bottom: 1px solid #ccc;\"><a href=\"https:\/\/elearning.wfh.org\/fr\/resource\/fiche-dinformation-sur-les-traitements-substitutifs\/\"><img src=\"https:\/\/elearning.wfh.org\/wp-content\/uploads\/2024\/02\/2381-img.png\" \/><\/a><\/div>\n<div>\n<p style=\"padding: 1em 1em 0 1em;\"><a href=\"https:\/\/elearning.wfh.org\/fr\/resource\/fiche-dinformation-sur-les-traitements-substitutifs\/\">Fiche d\u2019information sur les traitements substitutifs<\/a><\/p>\n<\/div>\n<div>\n<p style=\"font-size: 1rem; white-space: nowrap; padding: .6em 1em .6em 1em; margin: 0; color: #1f3f78; background: #f2f4f5; font-weight: bold;\"><i class=\"far fa-file-pdf\"><\/i>\u00a0\u00a0DOCUMENTS ET PDF<\/p>\n<\/div>\n<\/div>\n<\/div>\n<p class=\"clamp_p\" style=\"margin-top: 2em;\"><em>L\u2019outil de prise de d\u00e9cision partag\u00e9e de la FMH b\u00e9n\u00e9ficie d\u2019une subvention p\u00e9dagogique financ\u00e9e par F. Hoffman-La Roche, Pfizer, Sanofi et Sobi.<\/em><\/p>\n<div class=\"alert alert-danger\" style=\"color: #333333!important; border-color: #fedede; background-color: #fdeaea; padding: 1em 1em 1em 4em; position: relative; margin-top: 2em;\">\n<div style=\"bottom: 0; left: 0; position: absolute; top: 0; width: 4em; color: #ff7877;\">\n<p class=\"fa fa-info-circle\" style=\"left: 50%; top: 50%; position: absolute; transform: translate(-50%, -50%); font-size: 1.7em;\">\n<\/div>\n<p class=\"\">La F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie ne pratique pas la m\u00e9decine et ne recommande en aucun cas de traitement pr\u00e9cis \u00e0 qui que ce soit. Pour un diagnostic ou une consultation sur un probl\u00e8me m\u00e9dical sp\u00e9cifique, la FMH vous recommande de contacter votre m\u00e9decin ou le centre de traitement local. Avant d\u2019administrer tout produit, la FMH recommande aux patients de v\u00e9rifier les doses avec un m\u00e9decin ou le personnel du centre de traitement, et de consulter les instructions \u00e9crites fournies par le laboratoire pharmaceutique.<\/p>\n<p class=\"\">La FMH ne fait la promotion d\u2019aucun produit pharmaceutique particulier et toute mention d\u2019une marque commerciale dans cette pr\u00e9sentation est strictement \u00e0 des fins \u00e9ducatives.<\/p>\n<\/div>\n","protected":false},"featured_media":28639,"template":"","format":[3953],"old-keyword":[],"topic":[3990,4963,3985],"serie":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v23.4 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Outil de prise de d\u00e9cision partag\u00e9e de la FMH pour la prise en charge de l\u2019h\u00e9mophilie - eLearning Platform<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/elearning.wfh.org\/fr\/resource\/outil-de-prise-de-decision-partagee-de-la-fmh-pour-la-prise-en-charge-de-lhemophilie\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Outil de prise de d\u00e9cision partag\u00e9e de la FMH pour la prise en charge de l\u2019h\u00e9mophilie - eLearning Platform\" \/>\n<meta property=\"og:description\" content=\"L\u2019outil de prise de d\u00e9cision partag\u00e9e de la FMH est un syst\u00e8me interactif d\u2019aide \u00e0 la d\u00e9cision con\u00e7u pour faciliter les discussions sur les options th\u00e9rapeutiques entre les personnes atteintes d\u2019h\u00e9mophilie A ou B et\/ou les aidants et leur \u00e9quipe soignante, afin d\u2019aboutir \u00e0 une prise de d\u00e9cision \u00e9clair\u00e9e. L\u2019outil de prise de d\u00e9cision partag\u00e9e [&hellip;]\" \/>\n<meta property=\"og:url\" content=\"https:\/\/elearning.wfh.org\/fr\/resource\/outil-de-prise-de-decision-partagee-de-la-fmh-pour-la-prise-en-charge-de-lhemophilie\/\" \/>\n<meta property=\"og:site_name\" content=\"eLearning Platform\" \/>\n<meta property=\"article:modified_time\" content=\"2025-05-06T18:45:38+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/elearning.wfh.org\/wp-content\/uploads\/2024\/02\/sdm-tool-FR.png\" \/>\n\t<meta property=\"og:image:width\" content=\"1200\" \/>\n\t<meta property=\"og:image:height\" content=\"630\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/png\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Dur\u00e9e de lecture estim\u00e9e\" \/>\n\t<meta name=\"twitter:data1\" content=\"4 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"WebPage\",\"@id\":\"https:\/\/elearning.wfh.org\/fr\/resource\/outil-de-prise-de-decision-partagee-de-la-fmh-pour-la-prise-en-charge-de-lhemophilie\/\",\"url\":\"https:\/\/elearning.wfh.org\/fr\/resource\/outil-de-prise-de-decision-partagee-de-la-fmh-pour-la-prise-en-charge-de-lhemophilie\/\",\"name\":\"Outil de prise de d\u00e9cision partag\u00e9e de la FMH pour la prise en charge de l\u2019h\u00e9mophilie - 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