{"id":24684,"date":"2022-11-09T15:40:23","date_gmt":"2022-11-09T19:40:23","guid":{"rendered":"https:\/\/elearning.wfh.org\/resource\/maladie-de-willebrand-congres-mondial-2022-de-la-fmh\/"},"modified":"2022-11-16T11:54:12","modified_gmt":"2022-11-16T15:54:12","slug":"maladie-de-willebrand-congres-mondial-2022-de-la-fmh","status":"publish","type":"resource","link":"https:\/\/elearning.wfh.org\/fr\/resource\/maladie-de-willebrand-congres-mondial-2022-de-la-fmh\/","title":{"rendered":"Maladie de Willebrand | Congr\u00e8s Mondial 2022 de la FMH"},"content":{"rendered":"<p class=\"clamp_p\" style=\"margin-bottom: 2em;\">Dans ces sessions issues du Congr\u00e8s mondial 2022 de la FMH, \u00e9couter Peter Lenting, Magdy El Ekiaby, Nathan Connell, Brooke Sadler, Giancarlo Castaman, James O\u2019Donnell, Baiba Ziemele, Veronica Flood, Paula James et Helen Campbell aborder des sujets d&rsquo;actualit\u00e9 concernant la maladie de Willebrand.<\/p>\n<div class=\"alert alert-danger\" style=\"color: #333333!important; border-color: #fedede; background-color: #fdeaea; padding: 1em 1em 1em 4em; position: relative; margin-top: 1em; margin-bottom: 2em!important;\">\n<div style=\"bottom: 0; left: 0; position: absolute; top: 0; width: 4em; color: #ff7877;\">\n<p class=\"fa fa-info-circle\" style=\"left: 50%; top: 50%; position: absolute; transform: translate(-50%, -50%); font-size: 1.7em;\">\n<\/div>\n<p class=\"clamp_p\">La F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie ne pratique pas la m\u00e9decine et ne recommande en aucun cas de traitement pr\u00e9cis \u00e0 qui que ce soit. Pour un diagnostic ou une consultation sur un probl\u00e8me m\u00e9dical sp\u00e9cifique, la FMH vous recommande de contacter votre m\u00e9decin ou le centre de traitement local. Avant d\u2019administrer tout produit, la FMH recommande aux patients de v\u00e9rifier les doses avec un m\u00e9decin ou le personnel du centre de traitement, et de consulter les instructions \u00e9crites fournies par le laboratoire pharmaceutique. <\/p>\n<p class=\"clamp_p\">La FMH ne fait la promotion d\u2019aucun produit pharmaceutique particulier et toute mention d\u2019une marque commerciale dans cette pr\u00e9sentation est strictement \u00e0 des fins \u00e9ducatives.<\/p>\n<\/div>\n<div id=\"accordion\">\n<div class=\"card\" style=\"margin-bottom: .5em;\">\n<div id=\"headingOne\" class=\"card-header\">\n<h5 class=\"mb-0\"><button class=\"btn btn-link btn-acc\" data-toggle=\"collapse\" data-target=\"#collapseOne\" aria-expanded=\"true\" aria-controls=\"collapseOne\">Conf\u00e9rence Arosenius : vers de nouvelles options de traitement dans la maladie de Willebrand<\/button><\/h5>\n<\/div>\n<div id=\"collapseOne\" class=\"collapse\" aria-labelledby=\"headingOne\" data-parent=\"#accordion\">\n<div class=\"card-body\">\n<p class=\"\">Dans cette session pl\u00e9ni\u00e8re issue du Congr\u00e8s mondial 2022 de la FMH, Peter Lenting (France) a re\u00e7u le prix Arosenius et s\u2019est concentr\u00e9 sur les strat\u00e9gies th\u00e9rapeutiques nouvelles dans la MW. Elles comprennent l\u2019utilisation de l\u2019anticorps bisp\u00e9cifique emicizumab dans le traitement de la PW de type 3, et de l\u2019aptamer BT200 pour faire augmenter les taux de complexe FW\/FVIII. De plus, il pr\u00e9sente des approches nouvelles bas\u00e9es sur l\u2019utilisation de mol\u00e9cules de synth\u00e8se tet d\u2019anticorps \u00e0 domaine unique, deux solutions qui sont en phase de d\u00e9couverte pr\u00e9clinique.<\/p>\n<div style=\"margin-top: 1em; padding: 56.25% 0 0 0; position: relative;\"><iframe style=\"position: absolute; top: 0; left: 0; width: 100%; height: 100%; border: 1px solid #d8d8d8;\" src=\"https:\/\/player.vimeo.com\/video\/711539350?h=76e188c5d9&#038;byline=0&#038;portrait=0\" width=\"640\" height=\"360\" frameborder=\"0\" allowfullscreen=\"allowfullscreen\"><\/iframe><\/div>\n<\/div>\n<\/div>\n<\/div>\n<div class=\"card\" style=\"margin-bottom: .5em;\">\n<div id=\"headingTwo\" class=\"card-header\">\n<h5 class=\"mb-0\"><button class=\"btn btn-link btn-acc collapsed\" data-toggle=\"collapse\" data-target=\"#collapseTwo\" aria-expanded=\"false\" aria-controls=\"collapseTwo\">Maladie de Willebrand et facteur Willebrand<\/button><\/h5>\n<\/div>\n<div id=\"collapseTwo\" class=\"collapse\" aria-labelledby=\"headingTwo\" data-parent=\"#accordion\">\n<div class=\"card-body\">\n<p class=\"\">Dans cette session issue du Congr\u00e8s mondial 2022 de la FMH, Magdy El Ekiaby (\u00c9gypte), Nathan Connell (\u00c9tats-Unis), Brooke Sadler (\u00c9tats-Unis), Giancarlo Castaman (Italie) et James O\u2019Donnell (Irlande), \u00e9voquent l\u2019am\u00e9lioration significative ces derni\u00e8res d\u00e9cennies des connaissances sur la pathog\u00e9n\u00e8se de la maladie de Willebrand (MW), gr\u00e2ce notamment \u00e0 une cartographie g\u00e9n\u00e9tique d\u00e9taill\u00e9e du g\u00e8ne du facteur Willebrand, et \u00e0 des avanc\u00e9es dans les technologies g\u00e9n\u00e9tiques et bio-informatiques. Cependant, celles-ci ne se traduisent pas toujours facilement par une am\u00e9lioration de la prise en charge des patient\u00b7es atteint\u00b7es de la MW et pr\u00e9sentant des taux faibles de facteur Willebrand. Les intervenant\u00b7es de cette session examineront : la MW dans le cadre ou non du facteur Willebrand ; la prise en charge de la grossesse chez les femmes atteintes de la MW ; ainsi que le r\u00f4le de l\u2019axe FW\/ADAMTS-13 dans l\u2019infection par la COVID-19.<\/p>\n<div style=\"margin-top: 1em; padding: 56.25% 0 0 0; position: relative;\"><iframe style=\"position: absolute; top: 0; left: 0; width: 100%; height: 100%; border: 1px solid #d8d8d8;\" src=\"https:\/\/player.vimeo.com\/video\/711547358?h=84ef6e26b4&#038;byline=0&#038;portrait=0\" width=\"640\" height=\"360\" frameborder=\"0\" allowfullscreen=\"allowfullscreen\"><\/iframe><\/div>\n<\/div>\n<\/div>\n<\/div>\n<p><!--div class=\"card\" style=\"margin-bottom: .5em;\">\n\n\n<div id=\"headingThree\" class=\"card-header\">\n\n\n<h5 class=\"mb-0\"><button class=\"btn btn-link btn-acc collapsed\" data-toggle=\"collapse\" data-target=\"#collapseThree\" aria-expanded=\"false\" aria-controls=\"collapseThree\">VWD: Perspectives on the impact of people with bleeding disorders<\/button><\/h5>\n\n\n<\/div>\n\n\n\n\n<div id=\"collapseThree\" class=\"collapse\" aria-labelledby=\"headingThree\" data-parent=\"#accordion\">\n\n\n<div class=\"card-body\">\n\n\n<p class=\"\">In this session from the WFH 2022 World Congress, Baiba Ziemele (Latvia), Veronica Flood (United States), Paula James (Canada) and Helen Campbell (United Kingdom) will take a closer look into how von Willebrand Disease (VWD) is perceived worldwide and the treatment options that now exist.  It will also give the perspective of a person who lives with VWD, and how it differs between men and women.<\/p>\n\n\n\n\n\n<div style=\"margin-top: 1em; padding: 56.25% 0 0 0; position: relative;\"><iframe style=\"position: absolute; top: 0; left: 0; width: 100%; height: 100%; border: 1px solid #d8d8d8;\" src=\"https:\/\/player.vimeo.com\/video\/708708467?h=be1e08d42b&byline=0&portrait=0\" width=\"640\" height=\"360\" frameborder=\"0\" allowfullscreen=\"allowfullscreen\"><\/iframe><\/div>\n\n\n<\/div>\n\n\n<\/div>\n\n\n<\/div-->\n<\/div>\n<style>.btn-acc {background:#f7f7f7!important; box-shadow: none!important;text-align:left;white-space:normal;font-size:1em} .btn-acc:focus {color: #0056b3!important;} <\/style>\n<p><script>\ndocument.getElementsByClassName(\"elementor-element-df2f370\")[0].style.display = \"none\";\n<\/script><\/p>\n","protected":false},"featured_media":24976,"template":"","format":[4852],"old-keyword":[],"topic":[3984],"serie":[4243],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v23.4 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Maladie de Willebrand | Congr\u00e8s Mondial 2022 de la FMH - eLearning Platform<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/elearning.wfh.org\/fr\/resource\/maladie-de-willebrand-congres-mondial-2022-de-la-fmh\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Maladie de Willebrand | Congr\u00e8s Mondial 2022 de la FMH - eLearning Platform\" \/>\n<meta property=\"og:description\" content=\"Dans ces sessions issues du Congr\u00e8s mondial 2022 de la FMH, \u00e9couter Peter Lenting, Magdy El Ekiaby, Nathan Connell, Brooke Sadler, Giancarlo Castaman, James O\u2019Donnell, Baiba Ziemele, Veronica Flood, Paula James et Helen Campbell aborder des sujets d&rsquo;actualit\u00e9 concernant la maladie de Willebrand. La F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie ne pratique pas la m\u00e9decine et ne [&hellip;]\" \/>\n<meta property=\"og:url\" content=\"https:\/\/elearning.wfh.org\/fr\/resource\/maladie-de-willebrand-congres-mondial-2022-de-la-fmh\/\" \/>\n<meta property=\"og:site_name\" content=\"eLearning Platform\" \/>\n<meta property=\"article:modified_time\" content=\"2022-11-16T15:54:12+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/elearning.wfh.org\/wp-content\/uploads\/2022\/11\/Congress-vwd-thumbnail-FR.png\" \/>\n\t<meta property=\"og:image:width\" content=\"1200\" \/>\n\t<meta property=\"og:image:height\" content=\"630\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/png\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Dur\u00e9e de lecture estim\u00e9e\" \/>\n\t<meta name=\"twitter:data1\" content=\"3 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"WebPage\",\"@id\":\"https:\/\/elearning.wfh.org\/fr\/resource\/maladie-de-willebrand-congres-mondial-2022-de-la-fmh\/\",\"url\":\"https:\/\/elearning.wfh.org\/fr\/resource\/maladie-de-willebrand-congres-mondial-2022-de-la-fmh\/\",\"name\":\"Maladie de Willebrand | Congr\u00e8s Mondial 2022 de la FMH - 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