{"id":24270,"date":"2022-10-13T12:07:39","date_gmt":"2022-10-13T16:07:39","guid":{"rendered":"https:\/\/elearning.wfh.org\/resource\/registre-de-la-therapie-genique-de-la-fmh-notions-de-base-sur-lhemophilie-la-therapie-genique-et-la-collecte-de-donnees-a-long-terme\/"},"modified":"2024-11-04T16:09:41","modified_gmt":"2024-11-04T20:09:41","slug":"registre-de-la-therapie-genique-de-la-fmh-notions-de-base-sur-lhemophilie-la-therapie-genique-et-la-collecte-de-donnees-a-long-terme","status":"publish","type":"resource","link":"https:\/\/elearning.wfh.org\/fr\/resource\/registre-de-la-therapie-genique-de-la-fmh-notions-de-base-sur-lhemophilie-la-therapie-genique-et-la-collecte-de-donnees-a-long-terme\/","title":{"rendered":"Registre de la th\u00e9rapie g\u00e9nique de la FMH &#8211; Notions de base sur l\u2019h\u00e9mophilie, la th\u00e9rapie g\u00e9nique et la collecte de donn\u00e9es \u00e0 long terme"},"content":{"rendered":"<p class=\"clamp_p\">Ce document est un guide d\u2019introduction au <a href=\"https:\/\/wfh.org\/fr\/recherche-et-collecte-de-donnees\/#gtr\" target=\"_blank\" rel=\"noopener\">registre de la th\u00e9rapie g\u00e9nique<\/a>\u00a0(RTG) de la F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie (FMH). Il r\u00e9pond aux questions de base sur le registre, son objectif et ce \u00e0 quoi les participants peuvent s\u2019attendre. Ce guide est con\u00e7u pour aider les personnes qui re\u00e7oivent une th\u00e9rapie g\u00e9nique pour l\u2019h\u00e9mophilie et leurs \u00e9quipes de soins \u00e0 d\u00e9cider si elles doivent participer au registre.<\/p>\n<p class=\"clamp_p\">Veuillez contacter la FMH pour toute question concernant la participation au registre \u00e0 l\u2019adresse <a href=\"mailto:gtr@wfh.org\">gtr@wfh.org<\/a>.<\/p>\n<div style=\"margin: 2em 0; height: auto; display: grid; grid-gap: 2rem; grid-template-columns: repeat(auto-fit, minmax(300px, 1fr));\">\n<div style=\"display: flex; flex-direction: column; justify-content: space-between; border: 1px solid #ccc;\">\n<div style=\"border-bottom: 1px solid #ccc;\"><a href=\"https:\/\/elearning.wfh.org\/fr\/resource\/registre-de-la-therapie-genique-de-la-fmh-guide-de-lutilisation-pour-les-centres-de-traitement-de-lhemophilie\/\"><img fetchpriority=\"high\" class=\"alignnone\" src=\"https:\/\/elearning.wfh.org\/wp-content\/uploads\/2024\/11\/2301-img.png\" alt=\"\" width=\"1200\" height=\"675\" \/><\/a><\/div>\n<div>\n<p style=\"padding: 1em 1em 0 1em;\"><a href=\"https:\/\/elearning.wfh.org\/fr\/resource\/registre-de-la-therapie-genique-de-la-fmh-guide-de-lutilisation-pour-les-centres-de-traitement-de-lhemophilie\/\">Registre de la th\u00e9rapie g\u00e9nique de la FMH \u2013 Guide de l\u2019utilisation pour les centres de traitement de l\u2019h\u00e9mophilie<\/a><\/p>\n<\/div>\n<div>\n<p style=\"padding: .6em .5em .6em 1em; margin: 0; color: #1f3f78; background: #f2f4f5; font-weight: bold;\"><i class=\"far fa-file-pdf\"><\/i>\u00a0\u00a0DOCUMENTS ET PDF<\/p>\n<\/div>\n<\/div>\n<div style=\"display: flex; flex-direction: column; justify-content: space-between; border: 1px solid #ccc;\">\n<div style=\"border-bottom: 1px solid #ccc;\"><a href=\"https:\/\/elearning.wfh.org\/fr\/resource\/registre-de-la-therapie-genique-de-la-fmh-guide-de-lutilisateur-pour-les-personnes-atteintes-dhemophilie\/\"><img src=\"https:\/\/elearning.wfh.org\/wp-content\/uploads\/2024\/11\/2303-img.png\" \/><\/a><\/div>\n<div>\n<p style=\"padding: 1em 1em 0 1em;\"><a href=\"https:\/\/elearning.wfh.org\/fr\/resource\/registre-de-la-therapie-genique-de-la-fmh-guide-de-lutilisateur-pour-les-personnes-atteintes-dhemophilie\/\">Registre de la th\u00e9rapie g\u00e9nique de la FMH \u2013 Guide de l\u2019utilisateur pour les personnes atteintes d\u2019h\u00e9mophilie<\/a><\/p>\n<\/div>\n<div>\n<p style=\"padding: .6em .5em .6em 1em; margin: 0; color: #1f3f78; background: #f2f4f5; font-weight: bold;\"><i class=\"far fa-file-pdf\"><\/i>\u00a0\u00a0DOCUMENTS ET PDF<\/p>\n<\/div>\n<\/div>\n<\/div>\n<div class=\"alert alert-danger\" style=\"color: #333333!important; border-color: #fedede; background-color: #fdeaea; padding: 1em 1em 1em 4em; position: relative; margin-top: 1em;\">\n<div style=\"bottom: 0; left: 0; position: absolute; top: 0; width: 4em; color: #ff7877;\">\n<p class=\"fa fa-info-circle\" style=\"left: 50%; top: 50%; position: absolute; transform: translate(-50%, -50%); font-size: 1.7em;\">\n<\/div>\n<p class=\"\">La F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie ne pratique pas la m\u00e9decine et ne recommande en aucun cas de traitement pr\u00e9cis \u00e0 qui que ce soit. Pour un diagnostic ou une consultation sur un probl\u00e8me m\u00e9dical sp\u00e9cifique, la FMH vous recommande de contacter votre m\u00e9decin ou le centre de traitement local. Avant d\u2019administrer tout produit, la FMH recommande aux patients de v\u00e9rifier les doses avec un m\u00e9decin ou le personnel du centre de traitement, et de consulter les instructions \u00e9crites fournies par le laboratoire pharmaceutique.<\/p>\n<p class=\"\">La FMH ne fait la promotion d\u2019aucun produit pharmaceutique particulier et toute mention d\u2019une marque commerciale dans cette pr\u00e9sentation est strictement \u00e0 des fins \u00e9ducatives.<\/p>\n<\/div>\n<style>#other-lang {display:block!important;} #left-nav-switcher {display:none!important;}<\/style>\n","protected":false},"featured_media":29625,"template":"","format":[3958],"old-keyword":[],"topic":[3991],"serie":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v23.4 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Registre de la th\u00e9rapie g\u00e9nique de la FMH - Notions de base sur l\u2019h\u00e9mophilie, la th\u00e9rapie g\u00e9nique et la collecte de donn\u00e9es \u00e0 long terme - eLearning Platform<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/elearning.wfh.org\/fr\/resource\/registre-de-la-therapie-genique-de-la-fmh-notions-de-base-sur-lhemophilie-la-therapie-genique-et-la-collecte-de-donnees-a-long-terme\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Registre de la th\u00e9rapie g\u00e9nique de la FMH - Notions de base sur l\u2019h\u00e9mophilie, la th\u00e9rapie g\u00e9nique et la collecte de donn\u00e9es \u00e0 long terme - eLearning Platform\" \/>\n<meta property=\"og:description\" content=\"Ce document est un guide d\u2019introduction au registre de la th\u00e9rapie g\u00e9nique\u00a0(RTG) de la F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie (FMH). 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