{"id":401,"date":"2017-10-24T08:37:05","date_gmt":"2017-10-24T12:37:05","guid":{"rendered":"https:\/\/elearning.wfh.org\/resource\/puntaje-de-independencia-funcional-para-pacientes-con-hemofilia-fish\/"},"modified":"2022-09-21T15:02:37","modified_gmt":"2022-09-21T19:02:37","slug":"puntaje-de-independencia-funcional-para-pacientes-con-hemofilia-fish","status":"publish","type":"resource","link":"https:\/\/elearning.wfh.org\/es\/resource\/puntaje-de-independencia-funcional-para-pacientes-con-hemofilia-fish\/","title":{"rendered":"Puntaje de independencia funcional para pacientes con hemofilia (FISH)"},"content":{"rendered":"<h3>Functional Independence Score in Hemophilia (FISH) &#8211; 2007<\/h3>\n<p class=\"\"><strong>Authors\/developers:<\/strong><br class=\"\">Poonnoose PM, Padankatti S, Macaden AS, Srivastava A; Christian Medical College, Vellore, India.<\/p>\n<p class=\"\"><a href=\"https:\/\/www1.wfh.org\/docs\/en\/Publications\/Assessment_Tools\/FISHupdatedJan2017.pdf\" target=\"_blank\" rel=\"noopener\">Instructions and questionnaire<\/a><br class=\"\"><a href=\"https:\/\/www1.wfh.org\/docs\/en\/Publications\/Assessment_Tools\/FISH_scoring_sheet.pdf\" target=\"_blank\" rel=\"noopener\">Scoring sheet<\/a><\/p>\n<h6><em>N.B. These scores are posted with the permission of the developers.<\/em><\/h6>\n\t\t<div data-elementor-type=\"section\" data-elementor-id=\"7708\" class=\"elementor elementor-7708\" data-elementor-post-type=\"elementor_library\">\n\t\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-2a094c8e elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"2a094c8e\" data-element_type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-no\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-53c9ea5b\" data-id=\"53c9ea5b\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-c1d8042 elementor-widget elementor-widget-spacer\" data-id=\"c1d8042\" data-element_type=\"widget\" data-widget_type=\"spacer.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<div class=\"elementor-spacer\">\n\t\t\t<div class=\"elementor-spacer-inner\"><\/div>\n\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-5632fcfe elementor-widget elementor-widget-html\" data-id=\"5632fcfe\" data-element_type=\"widget\" data-widget_type=\"html.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<style>\r\n\r\n\/* Style the tab *\/\r\n.popTab {\r\n  float: left;\r\n  border: 1px solid #ccc;\r\n  background-color: #f1f1f1;\r\n  width: 35%;\r\n  height: 500px;\r\n}\r\n\r\n\/* Style the buttons inside the tab *\/\r\n.popTab button {\r\n  display: block;\r\n  background-color: inherit;\r\n  color: black;\r\n  padding: 15px 10px;\r\n  width: 100%;\r\n  border: none;\r\n  border-radius: 0;\r\n  outline: none;\r\n  text-align: left;\r\n  cursor: pointer;\r\n  transition: 0.3s;\r\n  font-size: 1.3em;\r\n}\r\n\r\n\/* Change background color of buttons on hover *\/\r\n.popTab button:hover {\r\n  background-color: #ddd;\r\n}\r\n\r\n\/* Create an active\/current tablink class *\/\r\n.popTab button.active {\r\n  background-color: #ccc;\r\n  border: none!important;\r\n}\r\n\r\n\/* Style the tab content *\/\r\n.popContent {\r\n  float: left;\r\n  padding: 0px 1em;\r\n  border: 1px solid #ccc;\r\n  width: 65%;\r\n  border-left: none;\r\n  height: 500px;\r\n  overflow-y:auto;\r\n}\r\n\r\n.popContent table tr {\r\n    \/*pointer-events: none;*\/\r\n\r\n}\r\n\r\n.popContent table td {\r\n    border-top: none;\r\n    border-left: none;\r\n    border-right: none;\r\n    border-bottom: 1px solid #eee;\r\n    background-color: white!important;\r\n    padding-left: 0;\r\n}\r\n\r\n<\/style>\r\n\r\n\r\n<div class=\"popTab\">\r\n   <button class=\"popLinks active\" onclick=\"openTab(event, 'description')\">Description<\/button>    \r\n   <button class=\"popLinks\" onclick=\"openTab(event, 'utility')\">Utility<\/button>\r\n   <button class=\"popLinks\" onclick=\"openTab(event, 'administration')\">Administration<\/button>\r\n   <button class=\"popLinks\" onclick=\"openTab(event, 'psychometrics')\">Psychometrics<\/button>\r\n   <button class=\"popLinks\" onclick=\"openTab(event, 'references')\">References<\/button>\r\n \r\n  \r\n<\/div>\r\n\r\n<div id=\"description\" class=\"popContent\">\r\n  <h3>Description<\/h3>\r\n  <p>The Functional Independence Score in Hemophilia (FISH) was developed as a performance-based assessment tool to objectively measure an individual\u2019s functional ability. It is intended to measure what the person with disability <em>actually does<\/em>, not what he ought to be able to do, or might be able to do if circumstances were different, or thinks he can do. It can also be used to evaluate change in functional independence over time, or after a therapeutic intervention<em>.<\/em><\/p>\r\n\r\n  <p>The FISH is relatively safe to perform. It is meant to complement other scores that measure body structure and function, such as clinical joint evaluation scores and radiological scores. Its major advantage is that it can be used with persons of different linguistic abilities, as it is an objective, performance-based instrument.<\/p>\r\n\r\n  <p>The FISH incorporates items that are perceived as important by persons with hemophilia. Patients with hemophilia, their relatives, and therapists were asked to list activities of daily living that were affected by the condition. Activities that were considered unsafe to perform were excluded from the assessment. Other activities such as education, employment, and participation in social events that could not be assessed objectively in the clinic were also excluded.<\/p>\r\n\r\n  <p>The current version of FISH includes the assessment of eight activities: eating, grooming, dressing, chair transfer, squatting, walking, step climbing, and running. \u00a0Each activity is graded according to the amount of assistance required to perform it. The level of independence for each activity is clearly defined to reduce inter-observer variance.<\/p>\r\n\r\n  <p><strong>Contact person(s):<\/strong><br>\r\n    PM Poonnoose: <a title=\"[GMCP] Compose a new mail to reenamg@cmcvellore.ac.in\" href=\"mailto:reenamg@cmcvellore.ac.in\" target=\"_blank\" rel=\"noreferrer noopener\">reenamg@cmcvellore.ac.in<\/a>, <a title=\"[GMCP] Compose a new mail to pradeep.cmc@gmail.com\" href=\"mailto:pradeep.cmc@gmail.com\" target=\"_blank\" rel=\"noreferrer noopener\">pradeep.cmc@gmail.com<\/a><br>\r\n    S Padankatti:\u00a0 <a title=\"[GMCP] Compose a new mail to sanjeevpadankatti@gmail.com\" href=\"mailto:sanjeevpadankatti@gmail.com\" target=\"_blank\" rel=\"noreferrer noopener\">sanjeevpadankatti@gmail.com<\/a><br>\r\n    AS Macaden: <a title=\"[GMCP] Compose a new mail to macaden@cmcvellore.ac.in\" href=\"mailto:macaden@cmcvellore.ac.in\" target=\"_blank\" rel=\"noreferrer noopener\">macaden@cmcvellore.ac.in<\/a><br>\r\n    A Srivastava: <a title=\"[GMCP] Compose a new mail to aloks@cmcvellore.ac.in\" href=\"mailto:aloks@cmcvellore.ac.in\" target=\"_blank\" rel=\"noreferrer noopener\">aloks@cmcvellore.ac.in<\/a><\/p>\r\n\r\n<p class=\"\"><strong>Date of this review: <\/strong>February 22, 2011<\/p>\r\n\r\n<\/div>\r\n\r\n\r\n<div id=\"utility\" class=\"popContent\" style=\"display:none\">\r\n  <h3>Utility<\/h3>\r\n  \r\n  <p><strong>Overall utility:<\/strong><br>\r\n    The FISH is the first performance-based score for assessment of musculoskeletal function in people with hemophilia. It was developed and validated in a group of patients who have significant arthropathy. It would therefore be useful in adolescents and adult patients who have not had access to prophylaxis.<\/p>\r\n\r\n  <p>It is recommended that the FISH be used in conjunction with other self-reported tools like the\u00a0<a href=\"https:\/\/elearning.wfh.org\/resource\/haemophilia-activities-list-hal\/\" target=\"_blank\" rel=\"noopener\">Haemophilia Activities List (HAL)<\/a>, if contextually relevant and useful. It is known from the literature that both types of instruments measure different constructs of physical functioning and the two types of scores complement each other.<\/p>\r\n\r\n  <p><strong>Limitations:<\/strong><br>\r\n    The FISH was originally designed to compare the patient\u2019s basic functional ability with that of normal healthy individuals. The current version therefore has a ceiling effect when applied to those with minimal musculoskeletal changes.<\/p>\r\n\r\n   <p>It was not designed to assess challenging activities in individuals with relatively \u201cnormal functional ability\u201d for activities of daily living. A new version that will incorporate these challenges is being developed to assess patients with otherwise near-normal musculoskeletal function to improve its utility in the assessment of such patients.<\/p>\r\n<\/div>\r\n\r\n\r\n<div id=\"administration\" class=\"popContent\" style=\"display:none\">\r\n  <h3>Administration<\/h3>        \r\n  <ol>\r\n <li><strong>Time to complete:<\/strong> 12-15 minutes, once the evaluator is well familiarized with the tool.<\/li>\r\n \t<li><strong>Equipment\/space required:<\/strong> <a href=\"https:\/\/www1.wfh.org\/docs\/en\/Publications\/Assessment_Tools\/FISH.pdf\" target=\"_blank\" rel=\"noopener\">See instructions<\/a>.<\/li>\r\n \t<li><strong>Training required:<\/strong> Any trained therapist or clinician can administer the FISH. The person administering the test should read the complete instructions prior to scoring the activity.<\/li>\r\n \t<li><strong>Cost:<\/strong> None<\/li>\r\n \t<li><strong>Scoring\/scaling and interpretation of results:<\/strong> Each activity should be scored only after observing the subject performing the task, and not based on their subjective ability. For some of the tasks, the required action may be simulated in the clinic and not actually performed. Each activity is graded from 1 to 4 according to the amount of assistance required to perform the activity. The maximum possible score is 32.<\/li>\r\n  <\/ol>\r\n<\/div>\t\r\n\r\n<div id=\"psychometrics\" class=\"popContent\" style=\"display:none\">\r\n  <h3>Psychometrics<\/h3>        \r\n  \r\n  <p><strong>Psychometric properties:<\/strong><\/p>\r\n\r\n  <p>The psychometric properties of FISH were studied in a population of 63 persons with hemophilia from India, aged between 7 and 40.<\/p>\r\n  \r\n  <ol style=\"margin-bottom:1em\">\r\n   <li>Construct validity: The FISH has a reasonable correlation with the <a href=\"https:\/\/elearning.wfh.org\/resource\/wfh-physical-examination-score-aka-gilbert-score\/\" target=\"_blank\" rel=\"noopener\">WFH Physical Examination Score<\/a> (-0.61) and Pettersson\u2019s radiological score (-0.38).The face validity and content validity are good, as the activities were selected by persons with hemophilia, their relatives, and therapists.<\/li>\r\n \t<li>Criterion validity: The FISH correlates well with other tests of functional ability such as the Stanford Health Assessment Questionnaire (HAQ) (r=-0.75), the Western Ontario and McMaster Universities Osteoarthritis Index (WOMAC) (r=-0.66), and the <a href=\"https:\/\/elearning.wfh.org\/resource\/haemophilia-activities-list-hal\/\" target=\"_blank\" rel=\"noopener\">Haemophilia Activities List (HAL)<\/a> (r =-0.66).<\/li>\r\n \t<li>Reliability: The FISH has high internal consistency (Cronbach\u2019s alpha of 0.85). The pooled intra-class correlation was calculated using six recordings of six observers on two occasions. The FISH has excellent reliability (ICC=0.98).<\/li>\r\n \t<li>Responsiveness\/sensitivity: The FISH was found to be responsive to changes in treatment following correction of joint deformities in a subset of patients that were assessed (standardized responsive mean of -1.93).<\/li>\r\n  <\/ol>\r\n  \r\n  <p><strong>Languages studied:<\/strong><\/p>\r\n  <p>The tool does not need to be translated for the patient as it is an objective, performance-based assessment tool. It is currently available in English for the therapist. An Italian version is under development.<\/p>\r\n\r\n  <p><strong>Groups tested with this measure:<\/strong><\/p>\r\n  <ul style=\"margin-bottom:1em\">\r\n    <li>Cross-cultural validation has been assessed in 90 patients from Mexico, including 60 children (aged 5-16 years) with mild, moderate, and severe hemophilia (Tlacuilo-Parra, 2010; Gruppo, 2010).<\/li>\r\n \t<li>Trials are currently under way at hemophilia centres in Romania and Italy.<\/li>\r\n<\/ul>\r\n\r\n  <p><a href=\"\/resource\/glossary-of-psychometric-properties\/\" target=\"_blank\" rel=\"noopener\"><button>Glossary of Psychometric Properties<\/button><\/a><\/p>\r\n\r\n<\/div>\r\n\r\n\r\n<div id=\"references\" class=\"popContent\" style=\"display:none\">\r\n   <h3>References<\/h3>        \r\n   <ol>\r\n<li>Hassan TH, Badr MA, El-Gerby KM. Correlation between musculoskeletal function and radiological joint scores in haemophilia A adolescents. <em>Haemophilia<\/em> 2011 Mar 3; doi: 10.1111\/j.1365-2516.2011.02496.x. [Epub ahead of print] PubMed PMID: 21371193.<\/li>\r\n \t<li>Hassan TH, Badr MA, Fattah NR, Badawy SM. Assessment of musculoskeletal function and mood in haemophilia A adolescents: a cross-sectional study. <em>Haemophilia<\/em> 2011 Mar 4; doi: 10.1111\/j.1365-2516.2010.02475.x. [Epub ahead of print] PubMed PMID: 21371189.<\/li>\r\n \t<li>Padankatti SM, Macaden AS, Cherian SM, Thirumugam M, Pazani D, Kalaiselvan M, John JA, Subbian E, Prakash H, Poonnoose PM, Kavitha ML, Devadarasini M, Viswabandya A, Mathews V, Srivastava A.\u00a0A patient-prioritized ability assessment in haemophilia: the Canadian Occupational Performance Measure. <em>Haemophilia<\/em> 2011 Feb 7. doi: 10.1111\/j.1365-2516.2010.02465.x. [Epub ahead of print].<\/li>\r\n \t<li>Gruppo RA. Treatment of hemophilia in developing countries: A journey of a thousand miles.<em>Pediatr Blood Cancer<\/em> 2010; 54:348\u2013349.<\/li>\r\n \t<li>Tlacuilo-Parra A, Villela-Rodriguez J, Garibaldi-Covarrubias R, Soto-Padilla J, and Orozco-Alcala, J. Functional Independence Score in Hemophilia: A cross-sectional study assessment of Mexican children. <em>Pediatr Blood Cancer<\/em> 2010; 54:394\u2013397.<\/li>\r\n \t<li>Poonnoose PM, Thomas R, Keshava SN, et al. Psychometric analysis of the Functional Independence Score in Haemophilia (FISH). <em>Haemophilia<\/em> 2007; 13:620\u2013626.<\/li>\r\n \t<li>Beeton, K, de Kleijn P, Hilliard P. et al. Recent developments in clinimetric instruments.<em>Haemophilia<\/em> 2006; 12(Suppl 3):102-107.<\/li>\r\n \t<li>Poonnoose PM, Srivastava A. Functional assessment of haemophilic arthropathy: An international perspective. <em>Seminars in Haematology<\/em> 2006; 43(Suppl 1):S27-S32.<\/li>\r\n \t<li>Poonnoose PM, Thomas R, Bhattacharjee S, Shyamkumar NK, Manigandan C, Srivastava A. Functional Independence Score in Haemophilia (FISH): A new performance based instrument to measure disability. <em>Haemophilia<\/em> 2005; 11:598-602.<\/li>\r\n \t<li>de Kleijn P, Gilbert M, Roosendaal G, Poonnoose PM, et al. Functional recovery after bleeding episodes in haemophilia. <em>Haemophilia<\/em> 2004; 10 (suppl 4):157-160.<\/li>\r\n<\/ol>\r\n\r\n<\/div>\r\n\r\n\r\n\r\n\r\n\r\n\r\n<script>\r\nfunction openTab(evt, country) {\r\n  var i, popContent, popLinks;\r\n  popContent = document.getElementsByClassName(\"popContent\");\r\n  for (i = 0; i < popContent.length; i++) {\r\n    popContent[i].style.display = \"none\";\r\n  }\r\n  popLinks = document.getElementsByClassName(\"popLinks\");\r\n  for (i = 0; i < popLinks.length; i++) {\r\n    popLinks[i].className = popLinks[i].className.replace(\" active\", \"\");\r\n  }\r\n  document.getElementById(country).style.display = \"block\";\r\n  evt.currentTarget.className += \" active\";\r\n}\r\n<\/script>\r\n   \t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-42217b1 elementor-widget elementor-widget-spacer\" data-id=\"42217b1\" data-element_type=\"widget\" data-widget_type=\"spacer.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<div class=\"elementor-spacer\">\n\t\t\t<div class=\"elementor-spacer-inner\"><\/div>\n\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t\n","protected":false},"featured_media":23059,"template":"","format":[],"old-keyword":[],"topic":[3977],"serie":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v23.4 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Puntaje de independencia funcional para pacientes con hemofilia (FISH) - eLearning Platform<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/elearning.wfh.org\/es\/resource\/puntaje-de-independencia-funcional-para-pacientes-con-hemofilia-fish\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Puntaje de independencia funcional para pacientes con hemofilia (FISH) - eLearning Platform\" \/>\n<meta property=\"og:description\" content=\"Functional Independence Score in Hemophilia (FISH) &#8211; 2007 Authors\/developers:Poonnoose PM, Padankatti S, Macaden AS, Srivastava A; Christian Medical College, Vellore, India. Instructions and questionnaireScoring sheet N.B. 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