{"id":398,"date":"2017-10-24T08:18:01","date_gmt":"2017-10-24T12:18:01","guid":{"rendered":"https:\/\/elearning.wfh.org\/resource\/lista-de-actividades-para-pacientes-con-hemofilia-hal\/"},"modified":"2022-09-21T15:05:29","modified_gmt":"2022-09-21T19:05:29","slug":"lista-de-actividades-para-pacientes-con-hemofilia-hal","status":"publish","type":"resource","link":"https:\/\/elearning.wfh.org\/es\/resource\/lista-de-actividades-para-pacientes-con-hemofilia-hal\/","title":{"rendered":"Lista de actividades para pacientes con hemofilia (HAL)"},"content":{"rendered":"<h3>Haemophilia Activities List (HAL) 2005<\/h3>\n<p class=\"\"><strong>Authors\/developers<\/strong><br class=\"\">van Genderen FR, van Meeteren NL, van der Bom JG, Heijnen L, De KP, van den Berg HM, Westers P, Helders PJ et al.; Van Creveldkliniek, University Medical Centre Utrecht, the Netherlands.<\/p>\n<p class=\"\"><a href=\"https:\/\/elearning.wfh.org\/resource\/hemophilia-activities-list-hal\/\" target=\"_blank\" rel=\"noopener\">Questionnaire<\/a><\/p>\n<h6><em>N.B. These scores are posted with the permission of the developers.<\/em><\/h6>\n<h6><em>A more recent version of this score has been developed. The score provided here (Version 2005) is the version for which the below evaluation was carried out.<\/em><\/h6>\n\t\t<div data-elementor-type=\"section\" data-elementor-id=\"7792\" class=\"elementor elementor-7792\" data-elementor-post-type=\"elementor_library\">\n\t\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-2acc91e elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"2acc91e\" data-element_type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-no\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-7768d7a7\" data-id=\"7768d7a7\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-1cfcaabf elementor-widget elementor-widget-spacer\" data-id=\"1cfcaabf\" data-element_type=\"widget\" data-widget_type=\"spacer.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<div class=\"elementor-spacer\">\n\t\t\t<div class=\"elementor-spacer-inner\"><\/div>\n\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-34c2e924 elementor-widget elementor-widget-html\" data-id=\"34c2e924\" data-element_type=\"widget\" data-widget_type=\"html.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<style>\r\n\r\n\/* Style the tab *\/\r\n.popTab {\r\n  float: left;\r\n  border: 1px solid #ccc;\r\n  background-color: #f1f1f1;\r\n  width: 35%;\r\n  height: 500px;\r\n}\r\n\r\n\/* Style the buttons inside the tab *\/\r\n.popTab button {\r\n  display: block;\r\n  background-color: inherit;\r\n  color: black;\r\n  padding: 15px 10px;\r\n  width: 100%;\r\n  border: none;\r\n  border-radius: 0;\r\n  outline: none;\r\n  text-align: left;\r\n  cursor: pointer;\r\n  transition: 0.3s;\r\n  font-size: 1.3em;\r\n}\r\n\r\n\/* Change background color of buttons on hover *\/\r\n.popTab button:hover {\r\n  background-color: #ddd;\r\n}\r\n\r\n\/* Create an active\/current tablink class *\/\r\n.popTab button.active {\r\n  background-color: #ccc;\r\n  border: none!important;\r\n}\r\n\r\n\/* Style the tab content *\/\r\n.popContent {\r\n  float: left;\r\n  padding: 0px 1em;\r\n  border: 1px solid #ccc;\r\n  width: 65%;\r\n  border-left: none;\r\n  height: 500px;\r\n  overflow-y:auto;\r\n}\r\n\r\n.popContent table tr {\r\n    \/*pointer-events: none;*\/\r\n\r\n}\r\n\r\n.popContent table td {\r\n    border-top: none;\r\n    border-left: none;\r\n    border-right: none;\r\n    border-bottom: 1px solid #eee;\r\n    background-color: white!important;\r\n    padding-left: 0;\r\n}\r\n\r\n<\/style>\r\n\r\n\r\n<div class=\"popTab\">\r\n   <button class=\"popLinks active\" onclick=\"openTab(event, 'description')\">Description<\/button>    \r\n   <button class=\"popLinks\" onclick=\"openTab(event, 'utility')\">Utility<\/button>\r\n   <button class=\"popLinks\" onclick=\"openTab(event, 'administration')\">Administration<\/button>\r\n   <button class=\"popLinks\" onclick=\"openTab(event, 'psychometrics')\">Psychometrics<\/button>\r\n   <button class=\"popLinks\" onclick=\"openTab(event, 'references')\">References<\/button>\r\n \r\n  \r\n<\/div>\r\n\r\n<div id=\"description\" class=\"popContent\">\r\n  <h3>Description<\/h3>\r\n  <p>The HAL measures the impact of hemophilia on self-perceived functional abilities in adults.<\/p>\r\n\r\n  <p>It contains 42 multiple choice questions in seven domains:<\/p>\r\n\r\n <ol style=\"margin-bottom:1em\">\r\n \t<li>Lying\/sitting\/kneeling\/standing (8 items)<\/li>\r\n \t<li>Functions of the legs (9 items)<\/li>\r\n \t<li>Functions of the arms (4 items)<\/li>\r\n \t<li>Use of transportation (3 items)<\/li>\r\n \t<li>Self-care (5 items)<\/li>\r\n \t<li>Household tasks (6 items)<\/li>\r\n \t<li>Leisure activities and sports (7 items)<\/li>\r\n<\/ol>\r\n\r\n  <p><strong>Contact person:<\/strong><br>\r\nKathelijn Fischer, at the secretariat of the Van Creveldkliniek, University Medical Centre Utrecht:\r\n<a href=\"mailto:vck-secretariaat@umcutrecht.nl\">vck-secretariaat@umcutrecht.nl<\/a>\r\n<\/p>\r\n\r\n<p class=\"\"><strong>Date of this review: <\/strong>February 18, 2011<\/p>\r\n\r\n<\/div>\r\n\r\n\r\n<div id=\"utility\" class=\"popContent\" style=\"display:none\">\r\n  <h3>Utility<\/h3>\r\n  \r\n  <p><strong>Overall utility:<\/strong><br>\r\n   The HAL measures functional outcome from the patient\u2019s perspective. The <a href=\"https:\/\/elearning.wfh.org\/resource\/functional-independence-score-in-hemophilia-fish\/\" target=\"_blank\" rel=\"noopener\">Functional Independence Score in Hemophilia (FISH)<\/a>\u00a0could be used as a complementary performance-based observational tool.<\/p>\r\n\r\n  <p><strong>Limitations:<\/strong><br>\r\n   The HAL has not been tested for reliability and sensitivity to change. Therefore, clinicians should take care with interpretation of results when used on different occasions. Its potential to detect clinically important changes as a result of therapeutic interventions is not yet known.<\/p>\r\n   \r\n \r\n\r\n<\/div>\r\n\r\n\r\n<div id=\"administration\" class=\"popContent\" style=\"display:none\">\r\n  <h3>Administration<\/h3>        \r\n   <ol style=\"margin-bottom:1em\">\r\n \t<li><strong>Time to complete:<\/strong> Approximately 5-10 minutes (for a native speaker). Scoring will take approximately 5 minutes.<\/li>\r\n \t<li><strong>Equipment\/space required:<\/strong> None. Only the questionnaire and a pen are needed.<\/li>\r\n \t<li><strong>Training required:<\/strong> None. The instructions provided are\u00a0self-explanatory.<\/li>\r\n \t<li><strong>Cost:<\/strong> None<\/li>\r\n \t<li><strong>Scoring\/scaling and interpretation of results:<\/strong> The most important outcomes are the overall sum score and three component scores relating to upper extremity activities, basic lower extremity activities, and complex lower extremity activities. A domain score for each of the seven domains can also be calculated.<\/li>\r\n<\/ol>\r\n\r\n<p>The scoring manual, available with the <a href=\"https:\/\/www1.wfh.org\/docs\/en\/Publications\/Assessment_Tools\/HAL_questionnaire.pdf\" target=\"_blank\" rel=\"noopener\">questionnaire<\/a>, is self-explanatory and shows calculations, normalizations, and adjustment for missing values.<\/p>\r\n<\/div>\t\r\n\r\n<div id=\"psychometrics\" class=\"popContent\" style=\"display:none\">\r\n  <h3>Psychometrics<\/h3>        \r\n  \r\n  <p><strong>Psychometric properties:<\/strong><\/p>\r\n  \r\n  <ol style=\"margin-bottom:1em\">\r\n \t<li>Construct validity: When compared to the Dutch Arthritis Impact Measurement Scale 2 (AIMS) and the Impact on Participation and Autonomy questionnaire (IPA), the convergent validity was good (r=0.47\u20130.84).\r\nThe construct validity of the HAL when compared to the four performance tests was generally lower (r=0.23\u20130.77).\r\nThe above findings indicate that the HAL measures a similar construct as the AIMS and IPA questionnaires and, to a lesser extent, the functional tests.<\/li>\r\n \t<li>Criterion validity has not been assessed. There is no gold standard to compare to the HAL.<\/li>\r\n \t<li>Reliability: The internal consistency for the seven domains of the HAL was good (\u03b1=0.61\u20130.96). The internal consistency of the three components was also good (Cronbach\u2019s alpha=0.93\u20130.95). Good internal consistency means that the items within the subscales measure similar functions.Test-retest reliability has not been assessed; comparison of scores obtained on different occasions should be made with care, until further data becomes available on test-retest reliability.<\/li>\r\n \t<li>Responsiveness\/sensitivity: The ability of the HAL to detect clinically important changes over time (e.g. before and after treatment) has yet to be established.<\/li>\r\n  <\/ol>\r\n  \r\n  <p><strong>Languages studied:<\/strong><\/p>\r\n  <p>The HAL was developed in Dutch. It is also available in English, German, Swedish, as well as Bengali, Hindi, Kannada, Tamil, and Telegu. However, cross-cultural validation has not yet been established.<\/p>\r\n\r\n  <p><strong>Groups tested with this measure:<\/strong><\/p>\r\n  <p>Adults with hemophilia: two study groups, n=50 (van Genderen et al, 2004) and n=127 (van Genderen et al, 2006). For the validity study of 2006, participants had severe hemophilia A or B and a median age of 42 years (range 18-70 years).<\/p>\r\n\r\n  <p><a href=\"\/resource\/glossary-of-psychometric-properties\/\" target=\"_blank\" rel=\"noopener\"><button>Glossary of Psychometric Properties<\/button><\/a><\/p>\r\n\r\n<\/div>\r\n\r\n\r\n<div id=\"references\" class=\"popContent\" style=\"display:none\">\r\n  <h3>References<\/h3>        \r\n  <ol>\r\n    <li>Brodin E, Baghaei F, Elfvinger P, Lindvall K, Sunnerhagen KS. The Swedish version of the Haemophilia Activity List. <em>Haemophilia<\/em> 2011 Feb 7. doi: 10.1111\/j.1365-2516.2010.02474.x [Epub ahead of print].<\/li>\r\n \t<li>van Genderen FR, van Meeteren NL, van der Bom JG, Heijnen L, De KP, van den Berg HM, et al. Functional consequences of haemophilia in adults: the development of the Haemophilia Activities List. <em>Haemophilia<\/em> 2004 Sep;10(5):565-71.<\/li>\r\n \t<li>van Genderen FR, Westers P, Heijnen L, De KP, van den Berg HM, Helders PJ, et al. Measuring patients' perceptions on their functional abilities: validation of the Haemophilia Activities List.<em>Haemophilia<\/em> 2006 Jan; 12(1):36-46.<\/li>\r\n  <\/ol>\r\n\r\n<\/div>\r\n\r\n\r\n\r\n\r\n\r\n\r\n<script>\r\nfunction openTab(evt, country) {\r\n  var i, popContent, popLinks;\r\n  popContent = document.getElementsByClassName(\"popContent\");\r\n  for (i = 0; i < popContent.length; i++) {\r\n    popContent[i].style.display = \"none\";\r\n  }\r\n  popLinks = document.getElementsByClassName(\"popLinks\");\r\n  for (i = 0; i < popLinks.length; i++) {\r\n    popLinks[i].className = popLinks[i].className.replace(\" active\", \"\");\r\n  }\r\n  document.getElementById(country).style.display = \"block\";\r\n  evt.currentTarget.className += \" active\";\r\n}\r\n<\/script>\r\n   \t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-41a23283 elementor-widget elementor-widget-spacer\" data-id=\"41a23283\" data-element_type=\"widget\" data-widget_type=\"spacer.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<div class=\"elementor-spacer\">\n\t\t\t<div class=\"elementor-spacer-inner\"><\/div>\n\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t\n","protected":false},"featured_media":23101,"template":"","format":[],"old-keyword":[],"topic":[3977],"serie":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v23.4 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Lista de actividades para pacientes con hemofilia (HAL) - eLearning Platform<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/elearning.wfh.org\/es\/resource\/lista-de-actividades-para-pacientes-con-hemofilia-hal\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Lista de actividades para pacientes con hemofilia (HAL) - eLearning Platform\" \/>\n<meta property=\"og:description\" content=\"Haemophilia Activities List (HAL) 2005 Authors\/developersvan Genderen FR, van Meeteren NL, van der Bom JG, Heijnen L, De KP, van den Berg HM, Westers P, Helders PJ et al.; Van Creveldkliniek, University Medical Centre Utrecht, the Netherlands. 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