{"id":32375,"date":"2026-10-23T09:00:16","date_gmt":"2026-10-23T13:00:16","guid":{"rendered":"https:\/\/elearning.wfh.org\/resource\/tecnologias-geneticas-para-la-hemofilia-serie-educativa-en-video-descripcion\/"},"modified":"2026-10-26T09:27:45","modified_gmt":"2026-10-26T13:27:45","slug":"tecnologias-geneticas-para-la-hemofilia-serie-educativa-en-video-descripcion","status":"publish","type":"resource","link":"https:\/\/elearning.wfh.org\/es\/resource\/tecnologias-geneticas-para-la-hemofilia-serie-educativa-en-video-descripcion\/","title":{"rendered":"Tecnolog\u00edas gen\u00e9ticas para la hemofilia"},"content":{"rendered":"<p class=\"clamp_p\" style=\"margin-bottom: 2em;\">Explora los fundamentos cient\u00edficos de las tecnolog\u00edas gen\u00e9ticas aplicadas a la hemofilia en esta serie de cuatro videos de la Federaci\u00f3n Mundial de Hemofilia (FMH). Aprende los conceptos b\u00e1sicos sobre los genes y el ADN, y descubre c\u00f3mo funcionan la terapia g\u00e9nica basada en vectores de virus adenoasociados (AAV), la terapia g\u00e9nica lentiviral y la edici\u00f3n gen\u00e9tica. Dise\u00f1ada para personas con trastornos de la coagulaci\u00f3n, sus familias y profesionales de la salud, esta serie ofrece una introducci\u00f3n clara y accesible a estos enfoques terap\u00e9uticos emergentes.<\/p>\n<div id=\"accordion\">\n<div class=\"card\" style=\"margin-bottom: .5em;\">\n<div id=\"headingOne\" class=\"card-header\">\n<h5 class=\"mb-0\">\n<div class=\"video-icon\"><i class=\"fas fa-video\"><\/i><\/div>\n<p><button class=\"btn btn-link btn-acc collapsed\" data-toggle=\"collapse\" data-target=\"#collapseOne\" aria-expanded=\"false\" aria-controls=\"collapseOne\">Episodio 1: Introducci\u00f3n<\/button><br \/>\n<\/h5>\n<\/div>\n<div id=\"collapseOne\" class=\"collapse\" aria-labelledby=\"headingOne\" data-parent=\"#accordion\">\n<div class=\"card-body\">\n<p class=\"\">Este video introductorio explica c\u00f3mo funcionan los genes y el ADN, y c\u00f3mo los cambios gen\u00e9ticos causan la hemofilia A y B. Ofrece una visi\u00f3n general de tres tecnolog\u00edas gen\u00e9ticas que actualmente se est\u00e1n estudiando o utilizando en la atenci\u00f3n de la hemofilia: la terapia g\u00e9nica con VAA, la terapia g\u00e9nica lentiviral y la edici\u00f3n g\u00e9nica. Este es el primer video de una serie de cuatro sobre tecnolog\u00edas gen\u00e9ticas para la hemofilia.<\/p>\n<div style=\"position: relative; width: 100%; aspect-ratio: 16 \/ 9;\"><iframe style=\"position: absolute; inset: 0; width: 100%; height: 100%; border: 1px solid #f2f4f5;\" src=\"https:\/\/www.youtube.com\/embed\/u5uVS5YP0Ro?hl=es&#038;cc_lang_pref=es&#038;cc_load_policy=1&#038;rel=0\" loading=\"lazy\" allowfullscreen=\"allowfullscreen\"><span data-mce-type=\"bookmark\" style=\"display: inline-block; width: 0px; overflow: hidden; line-height: 0;\" class=\"mce_SELRES_start\">\ufeff<\/span><br \/>\n<\/iframe><\/div>\n<\/div>\n<\/div>\n<\/div>\n<div class=\"card\" style=\"margin-bottom: .5em;\">\n<div id=\"headingTwo\" class=\"card-header\">\n<h5 class=\"mb-0\">\n<div class=\"video-icon\"><i class=\"fas fa-video\"><\/i><\/div>\n<p><button class=\"btn btn-link btn-acc\" data-toggle=\"collapse\" data-target=\"#collapseTwo\" aria-expanded=\"true\" aria-controls=\"collapseTwo\">Episodio 2: Terapia g\u00e9nica con VAA<\/button><br \/>\n<\/h5>\n<\/div>\n<div id=\"collapseTwo\" class=\"collapse\" aria-labelledby=\"headingTwo\" data-parent=\"#accordion\">\n<div class=\"card-body\">\n<p class=\"\">Este video ofrece una visi\u00f3n general de la terapia g\u00e9nica con vectores adenoasociados (VAA) para la hemofilia, incluyendo c\u00f3mo funciona, qui\u00e9nes pueden ser elegibles, sus posibles beneficios y limitaciones, as\u00ed como las consideraciones de seguimiento. Este es el segundo video de una serie de cuatro sobre tecnolog\u00edas gen\u00e9ticas para la hemofilia.<\/p>\n<div style=\"position: relative; width: 100%; aspect-ratio: 16 \/ 9;\"><iframe style=\"position: absolute; inset: 0; width: 100%; height: 100%; border: 1px solid #f2f4f5;\" src=\"https:\/\/www.youtube.com\/embed\/aog2nYl1AeY?hl=es&#038;cc_lang_pref=es&#038;cc_load_policy=1&#038;rel=0\" loading=\"lazy\" allowfullscreen=\"allowfullscreen\"><br \/>\n<\/iframe><\/div>\n<\/div>\n<\/div>\n<\/div>\n<div class=\"card\" style=\"margin-bottom: .5em;\">\n<div id=\"headingThree\" class=\"card-header\">\n<h5 class=\"mb-0\">\n<div class=\"video-icon\"><i class=\"fas fa-video\"><\/i><\/div>\n<p><button class=\"btn btn-link btn-acc collapsed\" data-toggle=\"collapse\" data-target=\"#collapseThree\" aria-expanded=\"false\" aria-controls=\"collapseThree\">Episodio 3: Terapia g\u00e9nica lentiviral<\/button><br \/>\n<\/h5>\n<\/div>\n<div id=\"collapseThree\" class=\"collapse\" aria-labelledby=\"headingThree\" data-parent=\"#accordion\">\n<div class=\"card-body\">\n<p class=\"\">Este video explica la terapia g\u00e9nica lentiviral, un enfoque terap\u00e9utico emergente que se est\u00e1 estudiando para la hemofilia A. Describe c\u00f3mo esta terapia utiliza las propias c\u00e9lulas madre sangu\u00edneas de una persona para introducir un gen funcional del factor de coagulaci\u00f3n y favorecer la producci\u00f3n a largo plazo de dicho factor. El video tambi\u00e9n explora los posibles beneficios, las consideraciones de seguridad y el estado actual de la investigaci\u00f3n y el desarrollo cl\u00ednico. Este es el tercer video de una serie de cuatro sobre tecnolog\u00edas gen\u00e9ticas para la hemofilia.<\/p>\n<div style=\"position: relative; width: 100%; aspect-ratio: 16 \/ 9;\"><iframe style=\"position: absolute; inset: 0; width: 100%; height: 100%; border: 1px solid #f2f4f5;\" src=\"https:\/\/www.youtube.com\/embed\/BFOEelBqXCs?hl=es&#038;cc_lang_pref=es&#038;cc_load_policy=1&#038;rel=0\" loading=\"lazy\" allowfullscreen=\"allowfullscreen\"><br \/>\n<\/iframe><\/div>\n<\/div>\n<\/div>\n<\/div>\n<div class=\"card\" style=\"margin-bottom: .5em;\">\n<div id=\"headingFour\" class=\"card-header\">\n<h5 class=\"mb-0\">\n<div class=\"video-icon\"><i class=\"fas fa-video\"><\/i><\/div>\n<p><button class=\"btn btn-link btn-acc collapsed\" data-toggle=\"collapse\" data-target=\"#collapseFour\" aria-expanded=\"false\" aria-controls=\"collapseFour\">Episodio 4: Edici\u00f3n gen\u00e9tica<\/button><br \/>\n<\/h5>\n<\/div>\n<div id=\"collapseFour\" class=\"collapse\" aria-labelledby=\"headingFour\" data-parent=\"#accordion\">\n<div class=\"card-body\">\n<p class=\"\">Este video presenta la edici\u00f3n g\u00e9nica como un tratamiento experimental prometedor para la hemofilia A y B. Explica c\u00f3mo las tecnolog\u00edas basadas en CRISPR pueden dirigirse con precisi\u00f3n al ADN para introducir genes terap\u00e9uticos, revisa los diferentes m\u00e9todos de administraci\u00f3n que se est\u00e1n estudiando actualmente y analiza las posibles ventajas y las preguntas que a\u00fan permanecen sin respuesta en este campo en r\u00e1pida evoluci\u00f3n. Este es el cuarto video de una serie de cuatro sobre tecnolog\u00edas gen\u00e9ticas para la hemofilia.<\/p>\n<div style=\"position: relative; width: 100%; aspect-ratio: 16 \/ 9;\"><iframe style=\"position: absolute; inset: 0; width: 100%; height: 100%; border: 1px solid #f2f4f5;\" src=\"https:\/\/www.youtube.com\/embed\/71kOCdGwHlI?hl=es&#038;cc_lang_pref=es&#038;cc_load_policy=1&#038;rel=0\" loading=\"lazy\" allowfullscreen=\"allowfullscreen\"><br \/>\n<\/iframe><\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<div class=\"alert alert-danger\" style=\"color: #333333!important; border-color: #fedede; background-color: #fdeaea; padding: 1em 1em 1em 4em; position: relative; margin-top: 1em; margin-bottom: 2em!important;\">\n<div style=\"bottom: 0; left: 0; position: absolute; top: 0; width: 4em; color: #ff7877;\">\n<p class=\"fa fa-info-circle\" style=\"left: 50%; top: 50%; position: absolute; transform: translate(-50%, -50%); font-size: 1.7em;\">\n<\/div>\n<p class=\"clamp_p\">La FMH no se compromete en la pr\u00e1ctica de la medicina y en ning\u00fan caso recomienda un tratamiento particular para individuos espec\u00edficos. Para el diagn\u00f3stico o consulta de un problema m\u00e9dico espec\u00edfico, la FMH recomienda que se ponga en contacto con su m\u00e9dico o con el centro de tratamiento local. Antes de administrar cualquier producto, la FMH insta a los pacientes a que comprueben las dosis con un m\u00e9dico o con el personal del centro de hemofilia, y a que consulten las instrucciones impresas de la compa\u00f1\u00eda farmac\u00e9utica.<\/p>\n<p class=\"clamp_p\">La FMH no promueve ning\u00fan producto farmac\u00e9utico en particular y cualquier menci\u00f3n de una marca comercial en esta presentaci\u00f3n es estrictamente con fines educativos.<\/p>\n<\/div>\n<style>#accordion {padding-bottom: 1.5rem;} #accordion .mb-0 {display: flex; gap: 4px;} .btn-acc { background:#f7f7f7!important; box-shadow: none!important;text-align:left;white-space:normal;font-size:1em} .btn-acc:focus {color: #0056b3!important;} .video-icon {width: 36px; height: 36px; border-radius: 8px; display: flex; align-items: center; justify-content: center; font-size: 16px; flex-shrink: 0; background: #e8edff; color: #3454d1; } <\/style>\n","protected":false},"featured_media":32371,"template":"","format":[3952],"old-keyword":[],"topic":[3978],"serie":[],"class_list":["post-32375","resource","type-resource","status-publish","has-post-thumbnail","hentry","topic-terapia-genica","format-videos-es"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.7 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Tecnolog\u00edas gen\u00e9ticas para la hemofilia - eLearning Platform<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/elearning.wfh.org\/es\/resource\/tecnologias-geneticas-para-la-hemofilia-serie-educativa-en-video-descripcion\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Tecnolog\u00edas gen\u00e9ticas para la hemofilia - eLearning Platform\" \/>\n<meta property=\"og:description\" content=\"Explora los fundamentos cient\u00edficos de las tecnolog\u00edas gen\u00e9ticas aplicadas a la hemofilia en esta serie de cuatro videos de la Federaci\u00f3n Mundial de Hemofilia (FMH). 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