{"id":24295,"date":"2022-10-13T13:35:15","date_gmt":"2022-10-13T17:35:15","guid":{"rendered":"https:\/\/elearning.wfh.org\/resource\/registro-de-terapia-genica-de-la-fmh-guia-del-usuario-para-personas-con-hemofilia\/"},"modified":"2024-11-04T16:24:32","modified_gmt":"2024-11-04T20:24:32","slug":"registro-de-terapia-genica-de-la-fmh-guia-del-usuario-para-personas-con-hemofilia","status":"publish","type":"resource","link":"https:\/\/elearning.wfh.org\/es\/resource\/registro-de-terapia-genica-de-la-fmh-guia-del-usuario-para-personas-con-hemofilia\/","title":{"rendered":"Registro de Terapia G\u00e9nica de la FMH &#8211; Gu\u00eda del usuario para personas con hemofilia"},"content":{"rendered":"<p class=\"clamp_p\">Este documento es una gu\u00eda introductoria al <a href=\"https:\/\/wfh.org\/es\/investigacion-y-recoleccion-de-datos\/#gtr\" target=\"_blank\" rel=\"noopener\">Registro de Terapia G\u00e9nica<\/a> (RTG) de la Federaci\u00f3n Mundial de Hemofilia (FMH). En \u00e9l se responde a preguntas b\u00e1sicas sobre el registro, su finalidad y lo que pueden esperar los participantes.<\/p>\n<p class=\"clamp_p\">P\u00f3ngase en contacto con la FMH si tiene preguntas sobre la participaci\u00f3n en el registro escribiendo a <a href=\"mailto:gtr@wfh.org\">gtr@wfh.org<\/a>.<\/p>\n<div style=\"margin: 2em 0; height: auto; display: grid; grid-gap: 2rem; grid-template-columns: repeat(auto-fit, minmax(300px, 1fr));\">\n<div style=\"display: flex; flex-direction: column; justify-content: space-between; border: 1px solid #ccc;\">\n<div style=\"border-bottom: 1px solid #ccc;\"><a href=\"https:\/\/elearning.wfh.org\/es\/resource\/registro-de-terapia-genica-de-la-fmh-fundamentos-de-la-hemofilia-terapia-genica-y-recogida-de-datos-a-largo-plazo\/\"><img src=\"https:\/\/elearning.wfh.org\/wp-content\/uploads\/2024\/11\/2298-img.png\" \/><\/a><\/div>\n<div>\n<p style=\"padding: 1em 1em 0 1em;\"><a href=\"https:\/\/elearning.wfh.org\/es\/resource\/registro-de-terapia-genica-de-la-fmh-fundamentos-de-la-hemofilia-terapia-genica-y-recogida-de-datos-a-largo-plazo\/\">Registro de Terapia G\u00e9nica de la FMH \u2013 Fundamentos de la hemofilia, terapia g\u00e9nica y recogida de datos a largo plazo<\/a><\/p>\n<\/div>\n<div>\n<p style=\"padding: .6em .5em .6em 1em; margin: 0; color: #1f3f78; background: #f2f4f5; font-weight: bold;\"><i class=\"far fa-file-pdf\"><\/i>\u00a0\u00a0DOCUMENTOS Y PDF<\/p>\n<\/div>\n<\/div>\n<div style=\"display: flex; flex-direction: column; justify-content: space-between; border: 1px solid #ccc;\">\n<div style=\"border-bottom: 1px solid #ccc;\"><a href=\"https:\/\/elearning.wfh.org\/es\/resource\/registro-de-terapia-genica-de-la-fmh-guia-del-usuario-para-los-centros-de-tratamiento-de-la-hemofilia-2\/\"><img src=\"https:\/\/elearning.wfh.org\/wp-content\/uploads\/2024\/11\/2300-img.png\" \/><\/a><\/div>\n<div>\n<p style=\"padding: 1em 1em 0 1em;\"><a href=\"https:\/\/elearning.wfh.org\/es\/resource\/registro-de-terapia-genica-de-la-fmh-guia-del-usuario-para-los-centros-de-tratamiento-de-la-hemofilia-2\/\">Registro de Terapia G\u00e9nica de la FMH \u2013 Gu\u00eda del usuario para los centros de tratamiento de la hemofilia<\/a><\/p>\n<\/div>\n<div>\n<p style=\"padding: .6em .5em .6em 1em; margin: 0; color: #1f3f78; background: #f2f4f5; font-weight: bold;\"><i class=\"far fa-file-pdf\"><\/i>\u00a0\u00a0DOCUMENTOS Y PDF<\/p>\n<\/div>\n<\/div>\n<\/div>\n<div class=\"alert alert-danger\" style=\"color: #333333!important; border-color: #fedede; background-color: #fdeaea; padding: 1em 1em 1em 4em; position: relative; margin-top: 1em;\">\n<div style=\"bottom: 0; left: 0; position: absolute; top: 0; width: 4em; color: #ff7877;\">\n<p class=\"fa fa-info-circle\" style=\"left: 50%; top: 50%; position: absolute; transform: translate(-50%, -50%); font-size: 1.7em;\">\n<\/div>\n<p class=\"\">La FMH no se compromete en la pr\u00e1ctica de la medicina y en ning\u00fan caso recomienda un tratamiento particular para individuos espec\u00edficos. Para el diagn\u00f3stico o consulta de un problema m\u00e9dico espec\u00edfico, la FMH recomienda que se ponga en contacto con su m\u00e9dico o con el centro de tratamiento local. Antes de administrar cualquier producto, la FMH insta a los pacientes a que comprueben las dosis con un m\u00e9dico o con el personal del centro de hemofilia, y a que consulten las instrucciones impresas de la compa\u00f1\u00eda farmac\u00e9utica.<\/p>\n<p class=\"\">La FMH no promueve ning\u00fan producto farmac\u00e9utico en particular y cualquier menci\u00f3n de una marca comercial en esta presentaci\u00f3n es estrictamente con fines educativos.<\/p>\n<\/div>\n<style>#other-lang {display:block!important;} #left-nav-switcher {display:none!important;}<\/style>\n","protected":false},"featured_media":29617,"template":"","format":[3956],"old-keyword":[],"topic":[3978],"serie":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v23.4 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Registro de Terapia G\u00e9nica de la FMH - Gu\u00eda del usuario para personas con hemofilia - eLearning Platform<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/elearning.wfh.org\/es\/resource\/registro-de-terapia-genica-de-la-fmh-guia-del-usuario-para-personas-con-hemofilia\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Registro de Terapia G\u00e9nica de la FMH - Gu\u00eda del usuario para personas con hemofilia - eLearning Platform\" \/>\n<meta property=\"og:description\" content=\"Este documento es una gu\u00eda introductoria al Registro de Terapia G\u00e9nica (RTG) de la Federaci\u00f3n Mundial de Hemofilia (FMH). 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